Support Needs of Parents of Children With Congenital Anomalies Across Europe: A EUROlinkCAT Survey
Our findings suggest that parents require greater support from HCPs at diagnosis, particularly psychological support. Further research in a European context is needed to understand what the barriers to support might be and how it may be integrated more effectively into existing healthcare systems.
Authors
- Ljubica Odak (ORCID: https://orcid.org/0000-0001-9023-5142)
- Carlos Matias Dias (ORCID: https://orcid.org/0000-0002-0206-5874)
- Anke Rißmann (ORCID: https://orcid.org/0000-0002-9437-2790)
- Joan K. Morris (ORCID: https://orcid.org/0000-0002-7164-612X)
- Clara Cavero‐Carbonell (ORCID: https://orcid.org/0000-0002-4858-6456)
- Anna Jamry‐Dziurla (ORCID: https://orcid.org/0000-0001-6102-4274)
- Anna Latos‐Bieleńska (ORCID: https://orcid.org/0000-0002-9152-1674)
- Elena Marcus (ORCID: https://orcid.org/0000-0003-0900-8976)
- Ester Garne (ORCID: https://orcid.org/0000-0003-0430-2594)
- Christina Neergaard Pedersen
- Anna Pierini (ORCID: https://orcid.org/0000-0003-3321-9343)
- Lucas Genard
- Judith M. Rankin (ORCID: https://orcid.org/0000-0001-5355-454X)
- Ingeborg Barišić (ORCID: https://orcid.org/0000-0002-9085-6747)
- L. Renée Lutke
- Ana João Santos (ORCID: https://orcid.org/0000-0003-0556-5513)
- Lucía Páramo‐Rodríguez (ORCID: https://orcid.org/0000-0002-2952-564X)
- Annika Niemann (ORCID: https://orcid.org/0000-0002-4404-1053)
- Elly Den Hond
- Amanda J. Neville
Institutions
- Poznan University of Medical Sciences (PL)
- University Medical Center Groningen (NL)
- University Hospital Centre Zagreb (HR)
- St George's, University of London (GB)
- University of Groningen (NL)
- University of Zagreb (HR)
- University of Ferrara (IT)
- Provincial Institute for Hygiene (BE)
- Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana (ES)
- Azienda Unità Sanitaria Locale di Ferrara (IT)
- Istituto di Fisiologia Clinica (IT)
- Arcispedale Sant'Anna (IT)
- Gouverneur Kinsbergencentrum (BE)
- Children's Hospital Zagreb (HR)
- Lillebaelt Hospital (DK)
- National Institute of Health Dr. Ricardo Jorge (PT)
- National Research Council (IT)
- Czech Academy of Sciences, Institute of Physiology (CZ)
- Newcastle University (GB)
- Otto-von-Guericke-Universität Magdeburg (DE)
Publication Details
- Journal
- Child Care Health and Development
- Published
- 2025-09-01
- DOI
- https://doi.org/10.1111/cch.70160
- Citations
- 1
- Primary Topic
- Family and Disability Support Research
- Type
- article
- Field-Weighted Citation Impact
- 2.31
Funders
- European Commission