‘For the love of God, just refer me’: a co-produced qualitative study of the experiences of people with Tourette Syndrome and tic disorders accessing healthcare services in the UK
The findings highlight a lack of prioritisation for tic disorders compounded by a healthcare structure which does not support a complex condition that requires a multidisciplinary approach. This research calls for improvements to UK healthcare services for CTD.
Authors
- Camilla Babbage (ORCID: https://orcid.org/0000-0002-6337-3352)
- Emma McNally
- Paul Stevenson (ORCID: https://orcid.org/0000-0002-1914-259X)
- E Bethan Davies (ORCID: https://orcid.org/0000-0003-3134-0879)
- Madeleine J. Groom (ORCID: https://orcid.org/0000-0002-5182-518X)
- J Salvage (ORCID: https://orcid.org/0000-0001-5691-0685)
- Seonaid Anderson (ORCID: https://orcid.org/0000-0001-8612-3463)
- Daniel P. Jones (ORCID: https://orcid.org/0000-0002-8208-162X)
Institutions
- University of Nottingham (GB)
- Hull City Council (GB)
- Tourettes Action (GB)
- Institute of Mental Health (GB)
- NIHR MindTech MedTech Co-operative (GB)
- Imperial Consultants (GB)
- Newcastle University (GB)
- University of Sheffield (GB)
Publication Details
- Journal
- BMJ Open
- Published
- 2025-09-01
- DOI
- https://doi.org/10.1136/bmjopen-2024-098306
- Citations
- 1
- Primary Topic
- Obsessive-Compulsive Spectrum Disorders
- Type
- article
- Field-Weighted Citation Impact
- 2.31
Funders
- Medical Research Council
- NIHR Nottingham Biomedical Research Centre