Allied health matters for people with young-onset dementia on the National Disability Insurance Scheme

Young-onset dementia presents unique care challenges that require comprehensive range of allied health interventions. While Australia's National Disability Insurance Scheme serves as the primary post-diagnostic care pathway for accessing these essential services, recent national survey findings reveal significant systemic barriers preventing people with young-onset dementia from obtaining adequate allied health care under this scheme. This perspective article outlines the critical but underrecognised role of allied health professionals in young-onset dementia care management and identifies key access barriers within the NDIS framework, including gaps in public awareness and provider education on young-onset dementia needs, and systemic issues affecting service coordination. Drawing on recent survey data, we briefly discuss current issues and concerns, and present key reform areas with direct implications for policymakers, National Disability Insurance Scheme planners, allied health professionals, and service providers. Our discussion highlights the urgent need for targeted reforms to enhance access to essential allied health professionals and improve outcomes for this growing, vulnerable population.

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Publication Details

Journal
Australian Health Review
Published
2025-09-04
DOI
https://doi.org/10.1071/ah25149
Primary Topic
Intergenerational Family Dynamics and Caregiving
Type
article
Field-Weighted Citation Impact
0.00
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article

Allied health matters for people with young-onset dementia on the National Disability Insurance Scheme

Naomi Moylan, Clare Beard, Priscilla Tjokrowijoto, Monica Cations et al.
1 links
Australian Health Review
Intergenerational Family Dynamics and Caregiving
article

Allied health matters for people with young-onset dementia on the National Disability Insurance Scheme

Naomi Moylan, Clare Beard, Priscilla Tjokrowijoto, Monica Cations, Jade Cartwright, Samantha M. Loi
article en

Abstract

Young-onset dementia presents unique care challenges that require comprehensive range of allied health interventions. While Australia's National Disability Insurance Scheme serves as the primary post-diagnostic care pathway for accessing these essential services, recent national survey findings reveal significant systemic barriers preventing people with young-onset dementia from obtaining adequate allied health care under this scheme. This perspective article outlines the critical but underrecognised role of allied health professionals in young-onset dementia care management and identifies key access barriers within the NDIS framework, including gaps in public awareness and provider education on young-onset dementia needs, and systemic issues affecting service coordination. Drawing on recent survey data, we briefly discuss current issues and concerns, and present key reform areas with direct implications for policymakers, National Disability Insurance Scheme planners, allied health professionals, and service providers. Our discussion highlights the urgent need for targeted reforms to enhance access to essential allied health professionals and improve outcomes for this growing, vulnerable population.

Australian Health ReviewVol. 49(5)
University of Tasmania (AU), The Royal Melbourne Hospital (AU), The University of Melbourne (AU), Flinders University (AU), Right to Care (ZA)
Openalex Percentile: Top 68%
Intergenerational Family Dynamics and Caregiving
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Allied health matters for people with young-onset dementia on the National Disability Insurance Scheme — Naomi Moylan, Clare Beard, et al. · Australian Health Review (2025) | TGRS Research Map | TGRS