A Survey of Oral Health-Related Quality of Life for Adults with Cerebral Palsy in Australia
<b>Objective:</b> Our aim was to investigate the oral health-related quality of life (OHRQoL) and dental care experiences of adults with Cerebral Palsy (CP). <b>Methods:</b> In 2023, adults with CP and their caregivers from four Australian states completed questionnaires, including the Oral Health Impact Profile-14 (OHIP-14). Non-parametric tests were conducted to analyze associations between demographic and CP-related variables and OHRQoL. <b>Results:</b> A total of 69 respondents participated, including <i>n</i> = 22 adults with CP and <i>n</i> = 47 caregivers of adults with CP. Most adults with CP were diagnosed with a spastic motor type (46/69, 66%), with bilateral spasticity being the most common (30/46, 65%). The mean OHIP-14 score was 10.3 ± 9.3 (mean ± SD). Nearly 70% reported challenges cleaning their teeth, over 25% lacked a dentist, more than 60% found dental exams challenging, and nearly 50% required specialized dental care. In bivariate analysis, OHIP-14 was associated with daily oral care routines (<i>p</i> = 0.012) and "simple dental check-up" (<i>p</i> = 0.017). There was a statistically significant relationship between socio-economic status and scores for the handicap dimension (<i>p</i> = 0.040). Higher OHIP-14 scores were associated with greater levels of impairment regarding gross motor (<i>p</i> = 0.199), manual functioning limitations (<i>p</i> = 0.001), speech (<i>p</i> = 0.123), and communication function scales (<i>p</i> = 0.319). <b>Conclusion:</b> Adults with CP reported challenges participating in and maintaining oral health and accessing dental care, influenced by physical, functional, and socio-economic factors. These findings indicate the need for inclusive care and strategies to support access to services.
Authors
- Michelle Irving (ORCID: https://orcid.org/0000-0001-7526-6258)
- Karen Lansdown (ORCID: https://orcid.org/0000-0003-3242-0889)
- Hayley Smithers‐Sheedy (ORCID: https://orcid.org/0000-0002-0082-2413)
- Kim Bulkeley (ORCID: https://orcid.org/0000-0002-7595-5624)
- Margaret McGrath (ORCID: https://orcid.org/0000-0002-4742-6805)
- Claudia Zagreanu (ORCID: https://orcid.org/0000-0001-8722-3511)
Institutions
- The University of Sydney (AU)
- New South Wales Department of Health (AU)
- Cerebral Palsy Alliance (AU)
- University College Cork (IE)
- Auckland University of Technology (NZ)
Publication Details
- Journal
- Dentistry Journal
- Published
- 2025-09-04
- DOI
- https://doi.org/10.3390/dj13090407
- Primary Topic
- Cerebral Palsy and Movement Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- International Federation of Dental Hygienists
- ACT Government
- Cerebral Palsy Alliance