Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study
Research teams conducting patient and caregiver engagement activities should draw from our findings to mitigate barriers and facilitate meaningful engagement experiences.
Authors
- Anna M. Chudyk (ORCID: https://orcid.org/0000-0001-8476-2093)
- Marion Knutson
- Sasha M. Kullman (ORCID: https://orcid.org/0000-0003-4086-2097)
- Amy K. Clark (ORCID: https://orcid.org/0000-0002-5804-8336)
- Lesley Singer (ORCID: https://orcid.org/0000-0002-6910-5973)
- Louise Bird
- Amanda Doherty‐Kirby (ORCID: https://orcid.org/0009-0002-0411-8367)
- Diana Ermel
- Nathalie Kinnard
- Andrew Milroy
Institutions
- Health Sciences Centre (CA)
- University of Manitoba (CA)
- The University of Winnipeg (CA)
Publication Details
- Journal
- Journal of Participatory Medicine
- Published
- 2025-09-04
- DOI
- https://doi.org/10.2196/79538
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00