Unmet needs and challenges faced by caregivers in tuberous sclerosis complex: An integrative review
Caregivers of individuals with TSC face significant challenges, yet meaningful support is limited. More research is needed to understand their burden, while developing tailored support, better resource access, and coordinated care are essential to improve their well-being and care quality.
Authors
- Maria P. Stefanatou (ORCID: https://orcid.org/0000-0001-7255-924X)
- Stylianos D. Gatzonis (ORCID: https://orcid.org/0000-0002-6498-3929)
- Stefanos Korfias (ORCID: https://orcid.org/0000-0001-9262-2031)
- Panayiotis Patrikelis (ORCID: https://orcid.org/0000-0002-4474-7566)
- Anastasia Verentzioti (ORCID: https://orcid.org/0000-0002-5649-2564)
- Theodoros Fasilis
- Athanasia Alexoudi (ORCID: https://orcid.org/0000-0002-8137-8253)
- Katerina Poprelka (ORCID: https://orcid.org/0000-0002-8570-6146)
- Evniki Ntinopoulou
- Lampis C. Stavrinou
Institutions
- National and Kapodistrian University of Athens (GR)
- Aristotle University of Thessaloniki (GR)
Publication Details
- Journal
- Epilepsy & Behavior
- Published
- 2025-08-27
- DOI
- https://doi.org/10.1016/j.yebeh.2025.110659
- Citations
- 1
- Primary Topic
- Tuberous Sclerosis Complex Research
- Type
- article
- Field-Weighted Citation Impact
- 1.16