Care Experiences of Family Caregivers of People with Dementia: A Nationwide Survey Study Comparing Caregivers with Migrant and Native Backgrounds
<b>Introduction:</b> Having a migration background might be associated with the care experiences of family caregivers of people with dementia. For example, caregivers with a migration background often face additional challenges in accessing professional care. The aim of this study was to provide insight into differences in care experiences between family caregivers with a native Dutch and a European or a non-European migration background. <b>Methods:</b> Data were used from a large-scale Dutch survey among family caregivers of relatives with dementia. The sample consisted of 170 caregivers with a European migration background, 199 caregivers with a non-European migration background and 4,158 caregivers with a native Dutch background. Linear and multinomial logistic regression analyses were used to analyse the survey data. The results were adjusted for background characteristics such as sex and age. <b>Results:</b> No differences were found between the two migrant groups and the native Dutch group in the perceived care burden and the caregiving intensity. Family caregivers with a European migration background were less likely to feel prepared for future changes in the dementia trajectory of their relative with dementia than caregivers with a native Dutch background. In addition, caregivers with a European migration background gave a lower score for their appreciation of the overall supply of care and support. <b>Discussion:</b> Caregivers with a <i>European</i> migration background, but not caregivers with a <i>non-European</i> migration background, were less likely to feel prepared for future changes than caregivers with a native Dutch background. In addition, they had lower appreciation for the overall supply of care and support. Offering a good supply of professional care and support, tailored to the individual situation and support needs, is important for caregivers in general, and those with a European migration background in particular.
Authors
- Iris van der Heide (ORCID: https://orcid.org/0000-0002-9709-7261)
- Femmy M. Bijnsdorp (ORCID: https://orcid.org/0000-0003-3488-7845)
- Susanne van den Buuse
- Anneke L. Francke (ORCID: https://orcid.org/0000-0001-7953-0693)
- Irene G. M. van Valkengoed (ORCID: https://orcid.org/0000-0002-9306-7831)
- Jany Rademakers (ORCID: https://orcid.org/0000-0003-2742-4543)
- Michiel L. A. de Graaff (ORCID: https://orcid.org/0009-0005-4253-1680)
Institutions
- Alzheimer's Association (US)
- Maastricht University (NL)
- Amsterdam Neuroscience (NL)
- Netherlands Institute for Health Services Research (NL)
- Department of Health (TW)
- Amsterdam University Medical Centers (NL)
- European Association for Palliative Care (BE)
- Amsterdam University of Applied Sciences (NL)
- Vrije Universiteit Amsterdam (NL)
- Inholland University of Applied Sciences (NL)
Publication Details
- Journal
- Dementia
- Published
- 2025-09-03
- DOI
- https://doi.org/10.1177/14713012251375251
- Primary Topic
- Intergenerational Family Dynamics and Caregiving
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- ZonMw