Care Experiences of Family Caregivers of People with Dementia: A Nationwide Survey Study Comparing Caregivers with Migrant and Native Backgrounds

<b>Introduction:</b> Having a migration background might be associated with the care experiences of family caregivers of people with dementia. For example, caregivers with a migration background often face additional challenges in accessing professional care. The aim of this study was to provide insight into differences in care experiences between family caregivers with a native Dutch and a European or a non-European migration background. <b>Methods:</b> Data were used from a large-scale Dutch survey among family caregivers of relatives with dementia. The sample consisted of 170 caregivers with a European migration background, 199 caregivers with a non-European migration background and 4,158 caregivers with a native Dutch background. Linear and multinomial logistic regression analyses were used to analyse the survey data. The results were adjusted for background characteristics such as sex and age. <b>Results:</b> No differences were found between the two migrant groups and the native Dutch group in the perceived care burden and the caregiving intensity. Family caregivers with a European migration background were less likely to feel prepared for future changes in the dementia trajectory of their relative with dementia than caregivers with a native Dutch background. In addition, caregivers with a European migration background gave a lower score for their appreciation of the overall supply of care and support. <b>Discussion:</b> Caregivers with a <i>European</i> migration background, but not caregivers with a <i>non-European</i> migration background, were less likely to feel prepared for future changes than caregivers with a native Dutch background. In addition, they had lower appreciation for the overall supply of care and support. Offering a good supply of professional care and support, tailored to the individual situation and support needs, is important for caregivers in general, and those with a European migration background in particular.

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Publication Details

Journal
Dementia
Published
2025-09-03
DOI
https://doi.org/10.1177/14713012251375251
Primary Topic
Intergenerational Family Dynamics and Caregiving
Type
article
Field-Weighted Citation Impact
0.00

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article

Care Experiences of Family Caregivers of People with Dementia: A Nationwide Survey Study Comparing Caregivers with Migrant and Native Backgrounds

Iris van der Heide, Femmy M. Bijnsdorp, Susanne van den Buuse, Anneke L. Francke et al.
Dementia
Intergenerational Family Dynamics and Caregiving
article

Care Experiences of Family Caregivers of People with Dementia: A Nationwide Survey Study Comparing Caregivers with Migrant and Native Backgrounds

Iris van der Heide, Femmy M. Bijnsdorp, Susanne van den Buuse, Anneke L. Francke, Irene G. M. van Valkengoed, Jany Rademakers, Michiel L. A. de Graaff
article en

Abstract

<b>Introduction:</b> Having a migration background might be associated with the care experiences of family caregivers of people with dementia. For example, caregivers with a migration background often face additional challenges in accessing professional care. The aim of this study was to provide insight into differences in care experiences between family caregivers with a native Dutch and a European or a non-European migration background. <b>Methods:</b> Data were used from a large-scale Dutch survey among family caregivers of relatives with dementia. The sample consisted of 170 caregivers with a European migration background, 199 caregivers with a non-European migration background and 4,158 caregivers with a native Dutch background. Linear and multinomial logistic regression analyses were used to analyse the survey data. The results were adjusted for background characteristics such as sex and age. <b>Results:</b> No differences were found between the two migrant groups and the native Dutch group in the perceived care burden and the caregiving intensity. Family caregivers with a European migration background were less likely to feel prepared for future changes in the dementia trajectory of their relative with dementia than caregivers with a native Dutch background. In addition, caregivers with a European migration background gave a lower score for their appreciation of the overall supply of care and support. <b>Discussion:</b> Caregivers with a <i>European</i> migration background, but not caregivers with a <i>non-European</i> migration background, were less likely to feel prepared for future changes than caregivers with a native Dutch background. In addition, they had lower appreciation for the overall supply of care and support. Offering a good supply of professional care and support, tailored to the individual situation and support needs, is important for caregivers in general, and those with a European migration background in particular.

DementiaVol. 25(2)
Alzheimer's Association (US), Maastricht University (NL), Amsterdam Neuroscience (NL), Netherlands Institute for Health Services Research (NL), Department of Health (TW), Amsterdam University Medical Centers (NL), European Association for Palliative Care (BE), Amsterdam University of Applied Sciences (NL), Vrije Universiteit Amsterdam (NL), Inholland University of Applied Sciences (NL)
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Openalex Percentile: Top 68%
Intergenerational Family Dynamics and Caregiving
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