A SERVICE EVALUATION TO SCOPE THE EXPERIENCE OF PATIENTS AT WORKING AGE WHO ARE DIAGNOSED WITH GLIOMA

Abstract AIMS Glioma is life changing, impacting morbidity, life expectancy and occupational status. Our neuro-oncology clinic utilises Oncologists, Physiotherapists, Occupational therapists, Radiographers, Speech and language therapists and Specialist Nurses. We explored employment after oncological treatments, the challenges faced and potential support strategies within a multi-disciplinary clinic. METHODS Prospective anonymised patient survey performed at a UK tertiary neuro-oncology centre. A random sample of 100 glioma patients invited by email to complete a survey between April-June 2024. A patient reported sit-to- stand task was included as a measure of physical fitness. Data analysed using excel and R. Chi squared tests used for comparisons RESULTS 46 responses received: 26 (57%) were female, 29 (63%) were > 40 years old at diagnosis. Representing a range of glioma: grade 2 (19.6%), grade 3 (43.4%) and grade 4 (32.6%). At diagnosis 78% were employed, at time of follow up 48% were unemployed: trending to affect those with lower salary (<£30k). 50% felt the employer did not understand their diagnosis and 50% felt work modifications were difficult to achieve. Surveyed patients wished to discuss employment at time of diagnosis. 26% of respondents only sought employment advice from family and friends, 10% spoke with no-one. 71% of those unemployed would like to work however 68% thought this unlikely. 50% thought employment was important to their care-giver. Employment associates positively with patient reported memory (p=0.033), sleep (p=0.038), physical ability (p=0.006), and sit-to-stand performance (p=0.014). CONCLUSION Employment is important to patients and their caregivers including those who believe they cannot work. Pa- tients wished to discuss employment at diagnosis but are not always clear who and where to look for support and advice. We identify scope to develop support and resources for patients and employers which could be delivered through a multi-disciplinary clinic. Survey results will influence neuro-oncology service design and demonstrate a precedent for future research.