Parental Stress and Family Quality of Life in Families of Individuals Living With Angelman Syndrome
Stress is elevated in parents of individuals with AS across subtypes and has a negative impact on FQOL. Interventions to reduce stress have the potential to improve individual and family well-being.
Authors
- Anjali Sadhwani (ORCID: https://orcid.org/0000-0003-0938-0591)
- Rachel J. Hundley (ORCID: https://orcid.org/0000-0001-5934-7832)
- Lynne M. Bird (ORCID: https://orcid.org/0000-0003-4833-3747)
- Rene Barbieri‐Welge
- Anna Booman (ORCID: https://orcid.org/0000-0002-8112-6929)
- Catherine Merton (ORCID: https://orcid.org/0000-0002-1702-3132)
- Wen‐Hann Tan (ORCID: https://orcid.org/0000-0002-1593-6149)
- Lucia T. Horowitz
- Anne Wheeler (ORCID: https://orcid.org/0000-0003-2693-5616)
- Angela Gwaltney (ORCID: https://orcid.org/0000-0002-2305-7187)
- Sarah Nelson Potter (ORCID: https://orcid.org/0000-0002-8640-8992)
Institutions
- Boston Children's Hospital (US)
- University of Massachusetts Chan Medical School (US)
- RTI International (US)
- Vanderbilt University (US)
- Rady Children's Hospital-San Diego (US)
- Stanford Medicine (US)
- Greenwood Genetic Center (US)
- Stanford University (US)
Publication Details
- Journal
- Journal of Intellectual Disability Research
- Published
- 2025-09-01
- DOI
- https://doi.org/10.1111/jir.70020
- Primary Topic
- Genetic Syndromes and Imprinting
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Center for Research Resources