Importance of Understanding the Patient Experience in Healthcare: An Example of the Integrated Patient Journey in Non-Cystic Fibrosis Bronchiectasis (NCFB)

Aim:To demonstrate how incorporating the patient voice into an Integrated Patient Journey (IPJ) can provide a comprehensive, actionable view of the clinical, emotional, financial, and social aspects of a disease, with non-cystic fibrosis bronchiectasis (NCFB) as a case study. Materials & Methods:The IPJ was created using literature-based evidence, real-world data, patient-reported outcome measures (PROMs), and qualitative insights from semi-structured patient interviews.Data were mapped into a standardized three-stage framework: Diagnosis, Treatment, and Follow-Up; capturing clinical touchpoints, patient experiences, and access considerations.The model was analyzed to identify key barriers, gaps, and opportunities relevant to product development, trial design, and patient support strategies. Conclusion:The IPJ revealed an array of unmet needs, including delayed diagnosis, fragmented referral pathways, limited imaging access, high treatment burden, medication adherence challenges, and more.Gathering patient insights within this structured framework enables targeted interventions such as patient advocacy group-driven clinical trial recruitment, inclusion of patient-prioritized endpoints, and inclusive trial designs.By aligning development strategies with lived patient experience, the IPJ advances patient-centered innovation, enhances market access, and shows the overall value of the patient voice.