A National Modified Delphi Consensus on the Referral and Management of NF1 Plexiform Neurofibroma
To our knowledge, this is the first national Delphi consensus on NF1-PN. Strong agreement was seen from HCPs on critical timings in NF1-PN treatment and management. The proposed recommendations and treatment algorithm provide a framework to enhance patient care and support ongoing research into optimizing care for NF1-PN patients, not just in Canada but globally.
Authors
- Vijay Ramaswamy (ORCID: https://orcid.org/0000-0002-6557-895X)
- Lucie Lafay‐Cousin (ORCID: https://orcid.org/0000-0003-4569-3499)
- Dr Mrinalini Singh
- Sébastien Perreault (ORCID: https://orcid.org/0000-0002-4417-7698)
- Katie Larner (ORCID: https://orcid.org/0000-0003-4502-8640)
Institutions
- University of Calgary (CA)
- University of Toronto (CA)
- Great Ormond Street Hospital (GB)
- Hospital for Sick Children (CA)
- Alberta Children's Hospital (CA)
- Centre Hospitalier Universitaire Sainte-Justine (CA)
- Conservation Science Partners (US)
- SickKids Foundation (CA)
- University College London (GB)
Publication Details
- Journal
- Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques
- Published
- 2025-09-02
- DOI
- https://doi.org/10.1017/cjn.2025.10409
- Citations
- 1
- Primary Topic
- Neurofibromatosis and Schwannoma Cases
- Type
- article
- Field-Weighted Citation Impact
- 1.39