The relationship between patient-reported quality of life and clinician-rated outcome scores in patients with autoimmune encephalitis: a study of the Australian Autoimmune Encephalitis Consortium
The relationships between clinician-rated outcomes and domains of quality of life varied from weak to moderate. This highlights the importance of integrating clinical measures and patient-reported outcomes when assessing outcomes post-AE.
Authors
- Catherine Meade
- Richard Macdonell (ORCID: https://orcid.org/0000-0001-6604-3968)
- Charles Benjamin Malpas (ORCID: https://orcid.org/0000-0003-0534-3718)
- Andrew Duncan (ORCID: https://orcid.org/0000-0002-7817-7637)
- Terence John O'Brien (ORCID: https://orcid.org/0000-0002-7198-8621)
- Laurie McLaughlin
- Robb Wesselingh (ORCID: https://orcid.org/0000-0002-5898-3287)
- Liora ter Horst
- Mastura Monif (ORCID: https://orcid.org/0000-0001-6404-9768)
- Christina Kazzi (ORCID: https://orcid.org/0000-0001-6737-5489)
- Anneke van der Walt (ORCID: https://orcid.org/0000-0002-4278-7003)
- Nabil Seery (ORCID: https://orcid.org/0000-0001-6446-868X)
- Genevieve Skinner
- Tracie Tan
- Stefan Blum (ORCID: https://orcid.org/0000-0002-2702-3742)
- Sarah Griffith (ORCID: https://orcid.org/0000-0002-7087-8703)
- Marie O’Shea
- Todd A. Hardy (ORCID: https://orcid.org/0000-0003-4145-3172)
- Mirasol Forcadela (ORCID: https://orcid.org/0000-0002-3268-4457)
- Wendyl D’Souza (ORCID: https://orcid.org/0000-0002-1750-5131)
- Hannah Ford
- Sudarshini Ramanathan (ORCID: https://orcid.org/0000-0002-0294-9768)
- Stephen Reddel (ORCID: https://orcid.org/0000-0002-0169-3350)
- Rubina Alpitsis
- Tiffany Rushen
- Kevin Ko
- Helmut Butzkueven
- Katherine Buzzard
- Udaya Senvieratne
Institutions
- The University of Sydney (AU)
- Concord Hospital (US)
- The Royal Melbourne Hospital (AU)
- The University of Queensland (AU)
- The University of Melbourne (AU)
- Concord Repatriation General Hospital (AU)
- Monash Medical Centre (AU)
- Princess Alexandra Hospital (AU)
- St Vincent's Hospital Melbourne (AU)
- Cooperative Trials Group for Neuro-Oncology (AU)
- Monash Alfred Psychiatry Research centre (AU)
- Eastern Health (AU)
- Monash Health (AU)
- Alfred Health (AU)
- Austin Health (AU)
- Monash University (AU)
Publication Details
- Journal
- Quality of Life Research
- Published
- 2025-08-31
- DOI
- https://doi.org/10.1007/s11136-025-04052-4
- Citations
- 1
- Primary Topic
- Autoimmune Neurological Disorders and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 1.39
Funders
- Monash University