Experience sampling in dementia: feasibility, utility and methodological insights from a high-intensity smartphone-based study
Abstract The experience sampling method (ESM) has proven valuable for studying everyday experiences across clinical populations but remains underexplored in dementia. This article assesses feasibility and utility of a smartphone-based ESM study co-designed with dementia stakeholders. Over 10 days, 12 participants with dementia (transdiagnostic, mean age = 62, range 52–72) responded to seven daily notifications assessing their thoughts and affect, and an end-of-day questionnaire on daily life satisfaction and meaning. Feasibility was evaluated via participation/compliance rates, drop-out, completion times, and subjective participation experiences. Data utility was assessed through between-person and within-person variance and intraclass correlation coefficients. The study achieved 80% compliance with no dropouts. Participants reported low burden and positive participation experiences. Data had substantial within- and between-person variability. Our study shows high-intensity smartphone-based ESM can be successfully implemented in targeted dementia subgroups, underscoring its potential to capture real-time subjective experiences and encouraging further ESM adaptation for more diverse dementia populations.
Authors
- Egon Dejonckheere (ORCID: https://orcid.org/0000-0002-7219-7506)
- Laura Dewitte (ORCID: https://orcid.org/0000-0002-8383-6801)
- Muireann Irish (ORCID: https://orcid.org/0000-0002-4950-8169)
- Jessie Dezutter (ORCID: https://orcid.org/0000-0002-3457-5334)
- Rebekah M. Ahmed (ORCID: https://orcid.org/0000-0001-6996-8317)
- Mathieu Vandenbulcke (ORCID: https://orcid.org/0000-0001-9765-1499)
Institutions
- The University of Sydney (AU)
- Tilburg University (NL)
- Royal Prince Alfred Hospital (AU)
- KU Leuven (BE)
Publication Details
- Journal
- npj Dementia
- Published
- 2025-08-30
- DOI
- https://doi.org/10.1038/s44400-025-00023-1
- Citations
- 1
- Primary Topic
- Mental Health Research Topics
- Type
- article
- Field-Weighted Citation Impact
- 2.12
Funders
- Fonds Wetenschappelijk Onderzoek
- Department of Health and Aged Care, Australian Government
- Vlaamse regering
- Medical Research Council
- National Health and Medical Research Council