Experience sampling in dementia: feasibility, utility and methodological insights from a high-intensity smartphone-based study

Abstract The experience sampling method (ESM) has proven valuable for studying everyday experiences across clinical populations but remains underexplored in dementia. This article assesses feasibility and utility of a smartphone-based ESM study co-designed with dementia stakeholders. Over 10 days, 12 participants with dementia (transdiagnostic, mean age = 62, range 52–72) responded to seven daily notifications assessing their thoughts and affect, and an end-of-day questionnaire on daily life satisfaction and meaning. Feasibility was evaluated via participation/compliance rates, drop-out, completion times, and subjective participation experiences. Data utility was assessed through between-person and within-person variance and intraclass correlation coefficients. The study achieved 80% compliance with no dropouts. Participants reported low burden and positive participation experiences. Data had substantial within- and between-person variability. Our study shows high-intensity smartphone-based ESM can be successfully implemented in targeted dementia subgroups, underscoring its potential to capture real-time subjective experiences and encouraging further ESM adaptation for more diverse dementia populations.

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Publication Details

Journal
npj Dementia
Published
2025-08-30
DOI
https://doi.org/10.1038/s44400-025-00023-1
Citations
1
Primary Topic
Mental Health Research Topics
Type
article
Field-Weighted Citation Impact
2.12

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article

Experience sampling in dementia: feasibility, utility and methodological insights from a high-intensity smartphone-based study

Egon Dejonckheere, Laura Dewitte, Muireann Irish, Jessie Dezutter et al.
1 citations
npj Dementia
Mental Health Research Topics
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article

Experience sampling in dementia: feasibility, utility and methodological insights from a high-intensity smartphone-based study

Egon Dejonckheere, Laura Dewitte, Muireann Irish, Jessie Dezutter, Rebekah M. Ahmed, Mathieu Vandenbulcke
article en
1 citations

Abstract

Abstract The experience sampling method (ESM) has proven valuable for studying everyday experiences across clinical populations but remains underexplored in dementia. This article assesses feasibility and utility of a smartphone-based ESM study co-designed with dementia stakeholders. Over 10 days, 12 participants with dementia (transdiagnostic, mean age = 62, range 52–72) responded to seven daily notifications assessing their thoughts and affect, and an end-of-day questionnaire on daily life satisfaction and meaning. Feasibility was evaluated via participation/compliance rates, drop-out, completion times, and subjective participation experiences. Data utility was assessed through between-person and within-person variance and intraclass correlation coefficients. The study achieved 80% compliance with no dropouts. Participants reported low burden and positive participation experiences. Data had substantial within- and between-person variability. Our study shows high-intensity smartphone-based ESM can be successfully implemented in targeted dementia subgroups, underscoring its potential to capture real-time subjective experiences and encouraging further ESM adaptation for more diverse dementia populations.

npj DementiaVol. 1(1)
The University of Sydney (AU), Tilburg University (NL), Royal Prince Alfred Hospital (AU), KU Leuven (BE)
Fonds Wetenschappelijk Onderzoek, Department of Health and Aged Care, Australian Government, Vlaamse regering, Medical Research Council, National Health and Medical Research Council
Openalex Percentile: Top 11%
Mental Health Research Topics
2.12
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