The epilepsy deaths register: Third-party reports of SUDEP in adults and older adolescents
Third-party death reports are an effective, under-utilised tool to sample SUDEP deaths which may currently be missed by conventional mortality records. SUDEP in the EDR was seen more frequently in young adults, those with longstanding epilepsy and during sleep and were most often found in a prone position. Heterogeneity across the spectrum of SUDEP deaths should prompt clinicians to warn all those with epilepsy of their SUDEP risk.
Authors
- Ben Donovan
- Elaine Hughes
- Donald P. Craig
- Rhys Huw Thomas (ORCID: https://orcid.org/0000-0003-2062-8623)
- Jane Hanna
- Karen Osland
- Jacob Brolly (ORCID: https://orcid.org/0000-0001-6337-5529)
- Alexander Grundmann
- Mike Kerr
Institutions
- Royal Victoria Infirmary (GB)
- Allergy Action (GB)
- Evelina London Children's Healthcare (GB)
- Cardiff University (GB)
- Newcastle University (GB)
Publication Details
- Journal
- Seizure
- Published
- 2025-08-29
- DOI
- https://doi.org/10.1016/j.seizure.2025.08.031
- Citations
- 2
- Primary Topic
- Epilepsy research and treatment
- Type
- article
- Field-Weighted Citation Impact
- 2.94
Funders
- SUDEP Action