Developing a Research-Ready-Data-Asset (RRDA) for Welsh primary care data within the SAIL Databank: enhancing data quality and reproducible research.
ObjectivesWe aimed to develop a high-performance RRDA for the Welsh Longitudinal General Practice (WLGP) data to standardise curation, enhance reproducibility, improve query performance and add additional value/features for research. The RRDA provides a curated normalised asset with a comprehensive clinical code look-up and assigned activities type. Methods WLGP data has a long-format event-list structure with potential data quality issues, including duplicates, re-inserted GP-to-GP-transferred records, and missing/invalid entries. To address these, the RRDA involves three steps: data cleaning, data curation using patient's GP registration history from demographic data, and transforming data into a structured, normalised format to eliminate redundancy and support faster, flexible large-scale queries. The WLGP-RRDA includes a look-up of primary care official/local codes (Read-V2/SNOMED/EMIS/Vision). Additionally, we implemented a four-layer approach for identifying healthcare providers, patient access mode, interaction type, and details of individual codes to capture the complexity of activities, enabling patient-practice interaction analysis. ResultsCurating WLGP data (1990-2024, 4,565m records, 5m people) revealed significant improvements in data quality and completeness over time, with data retaining rates after cleaning/curation increased from 38% to 94%. Similarly, patient inclusion in WLGP-RRDA improved from 43% to 98% during the same period, indicating improved data accuracy and Welsh residents coverage. The normalisation process resulted in an efficient three-table structure with unique integer keys for clinical codes and events, optimising database performance/scalability. The extensive clinical code look-up improved coverage of events with known descriptions, showing increased local/SNOMED code use since the pandemic. Additionally, implementing a multi-layered approach to identify interaction types (e.g., face-to-face/remote consultations) using official/local code hierarchies enabled analysis of national trends in GP activities and impact of the pandemic. ConclusionThe WLGP-RRDA development enhanced data quality and streamlines the research processes through a reproducible, maintainable, standardised curation and a multi-layered approach to extract activity types. This methodology/RRDA benefits SAIL users and wider across other environments with similar data, through our shared resources to promote transparency and collaboration.
Authors
- Ashley Akbari (ORCID: https://orcid.org/0000-0003-0814-0801)
- Stuart Bedston (ORCID: https://orcid.org/0000-0002-5635-5957)
- Hoda Abbasizanjani (ORCID: https://orcid.org/0000-0002-9575-4758)
Institutions
- Swansea University (GB)
Publication Details
- Journal
- International Journal for Population Data Science
- Published
- 2025-08-28
- DOI
- https://doi.org/10.23889/ijpds.v10i4.3123
- Primary Topic
- Clinical practice guidelines implementation
- Type
- article
- Field-Weighted Citation Impact
- 0.00