Research, development and implementation of a post-diagnostic support intervention for adults with a dual diagnosis of a learning disability and autism: Including service user voices

This study examines post-diagnostic support for autistic adults with learning disabilities, focusing on creating a tailored intervention. A literature review revealed gaps in services, including insufficient post-diagnosis support and the need for peer involvement. A group intervention was developed to provide psychoeducation, reduce anxiety, and foster a supportive space for sharing experiences. Participant feedback highlighted the value of community-building, though suggestions for improving structure and content of meetings were made. The pilot study offers insights into developing effective post-diagnostic support for autistic adults with a Learning Disability, emphasizing the importance of adaptability and ongoing service improvements. Easy to read summary ■ Many autistic adults with learning disabilities don’t get enough support after their diagnosis, which can lead to mental health struggles and difficulties in daily life. ■ Professionals sometimes don’t fully understand how to support autistic adults after diagnosis, providing the wrong type of help or too little support. ■ Autistic adults prefer informal peer support, where they can share experiences with others who understand, rather than formal services led by professionals. ■ Group sessions helped participants feel less isolated, but they needed shorter meetings and more practical advice to manage anxiety and other challenges.