The Role of Healthcare Financing and Delivery Systems to Promote Health for People With Intellectual and Developmental Disabilities

People with intellectual and developmental disabilities (IDD) face significant health disparities due to structural inequities, healthcare access challenges, and fragmented financing and delivery systems. This article presents key recommendations for improving healthcare financing and delivery systems developed at the American Association on Intellectual and Developmental Disabilities (AAIDD) National Goals for Health Equity for People with IDD meeting in June 2024. Strategic priorities included enhancing data collection and integration, developing standardized quality metrics tailored to people with IDD, and reforming healthcare financing to ensure equitable access to specialized care. The group also recommended increased development, regular evaluation of innovative healthcare financing and delivery models, and further research and advancement of health and wellness technologies specifically targeted to people with IDD. Finally, person centered approaches, informed by people with IDD and their families, were identified as critical to ensuring meaningful and effective reforms. Although challenges remain, this article emphasizes the urgent need for systemic changes to promote health equity and improve healthcare for people with IDD.

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Publication Details

Journal
Inclusion
Published
2025-08-25
DOI
https://doi.org/10.1352/2326-6988-13.3.175
Primary Topic
Adolescent and Pediatric Healthcare
Type
article
Field-Weighted Citation Impact
0.00
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article

The Role of Healthcare Financing and Delivery Systems to Promote Health for People With Intellectual and Developmental Disabilities

Parthenia Dinora, Julie Bershadsky, Joe Caldwell, Elizabeth M. Stone et al.
Inclusion
Adolescent and Pediatric Healthcare
article

The Role of Healthcare Financing and Delivery Systems to Promote Health for People With Intellectual and Developmental Disabilities

Parthenia Dinora, Julie Bershadsky, Joe Caldwell, Elizabeth M. Stone, Colleen Kidney, Ruth Brown-Ennis
article en

Abstract

People with intellectual and developmental disabilities (IDD) face significant health disparities due to structural inequities, healthcare access challenges, and fragmented financing and delivery systems. This article presents key recommendations for improving healthcare financing and delivery systems developed at the American Association on Intellectual and Developmental Disabilities (AAIDD) National Goals for Health Equity for People with IDD meeting in June 2024. Strategic priorities included enhancing data collection and integration, developing standardized quality metrics tailored to people with IDD, and reforming healthcare financing to ensure equitable access to specialized care. The group also recommended increased development, regular evaluation of innovative healthcare financing and delivery models, and further research and advancement of health and wellness technologies specifically targeted to people with IDD. Finally, person centered approaches, informed by people with IDD and their families, were identified as critical to ensuring meaningful and effective reforms. Although challenges remain, this article emphasizes the urgent need for systemic changes to promote health equity and improve healthcare for people with IDD.

InclusionVol. 13(3)
University of Minnesota (US), Virginia Commonwealth University (US), University of Minnesota System (US), Kidney Research UK (GB), St. Elizabeth Healthcare (US), Rutgers Sexual and Reproductive Health and Rights (NL), Human Services Research Institute (US), Caldwell University (US), Brandeis University (US)
Openalex Percentile: Top 70%
Adolescent and Pediatric Healthcare
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