The All of Us Research Program’s Social Media Outreach to Underrepresented Populations: Mixed Methods Analysis

In addition to highlighting UBR categories that are more and less emphasized in the AoURP's social media outreach, we also find that the program's messaging indeed resembles a solidaristic appeal to participate. Drawing upon the existing literature on solidarity, we leverage conceptualizations of solidarity as a shared practice grounded in mutuality and bidirectionality to question the AoURP's appeals when institutions fail to fully reciprocate this solidarity. Specifically, we raise concerns about (1) unclear links between participation and addressing health disparities, (2) incomplete acknowledgment of institutions' role in data disparities, and (3) the use of empowerment rhetoric that diverts the onus for correcting these disparities onto participants. Finally, we consider the implications of these issues for future outreach efforts.

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Publication Details

Journal
Journal of Medical Internet Research
Published
2025-08-22
DOI
https://doi.org/10.2196/63793
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
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article

The All of Us Research Program’s Social Media Outreach to Underrepresented Populations: Mixed Methods Analysis

Dennis J. Zhang, Michael Bentz, Janet K. Shim, Sandra Soo‐Jin Lee
Journal of Medical Internet Research
Ethics in Clinical Research
article

The All of Us Research Program’s Social Media Outreach to Underrepresented Populations: Mixed Methods Analysis

Dennis J. Zhang, Michael Bentz, Janet K. Shim, Sandra Soo‐Jin Lee
article en

Abstract

In addition to highlighting UBR categories that are more and less emphasized in the AoURP's social media outreach, we also find that the program's messaging indeed resembles a solidaristic appeal to participate. Drawing upon the existing literature on solidarity, we leverage conceptualizations of solidarity as a shared practice grounded in mutuality and bidirectionality to question the AoURP's appeals when institutions fail to fully reciprocate this solidarity. Specifically, we raise concerns about (1) unclear links between participation and addressing health disparities, (2) incomplete acknowledgment of institutions' role in data disparities, and (3) the use of empowerment rhetoric that diverts the onus for correcting these disparities onto participants. Finally, we consider the implications of these issues for future outreach efforts.

Journal of Medical Internet ResearchVol. 27
University of California, San Francisco (US), Columbia University Irving Medical Center (US), Cal Humanities (US), University of San Francisco (US), Columbia University (US)
Openalex Percentile: Top 70%
Ethics in Clinical Research
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