Unmet health-related needs of heritable arrhythmogenic cardiomyopathy carriers in Belgium: The UR-HEART survey study
Unmet needs among ACM carriers remain, particularly regarding delayed diagnosis, treatment burden, psychological stress, reproductive decisions, and access to information. Future care and research should address these gaps to improve ACM carriers' quality of life.
Authors
- P Locquet (ORCID: https://orcid.org/0009-0000-1689-1475)
- Pascal Borry (ORCID: https://orcid.org/0000-0002-4931-9560)
- Eva Van Steijvoort (ORCID: https://orcid.org/0000-0003-3134-4028)
- Zilke Claessens (ORCID: https://orcid.org/0000-0003-2895-1599)
- Isabelle Huys
- Tomas Robyns (ORCID: https://orcid.org/0000-0002-8676-4874)
- Margaux Reckelbus (ORCID: https://orcid.org/0009-0000-1148-3130)
Institutions
- KU Leuven (BE)
Publication Details
- Journal
- Heart Rhythm O2
- Published
- 2025-08-22
- DOI
- https://doi.org/10.1016/j.hroo.2025.08.029
- Primary Topic
- Cardiovascular Effects of Exercise
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- European Commission
- HORIZON EUROPE Framework Programme