Developing an instrument protocol to evaluate the effectiveness of the iSupport-Brazil Program for unpaid caregivers of people living with dementia
The objective of this study is to describe the process of developing a protocol to assess the iSupport-Brazil program's impact on the mental health and well-being of informal caregivers of people living with dementia This multicenter, methodological study comprises six stages: analysis of the iSupport program adaptation guide developed by the World Health Organization; review of protocols from other countries that have adopted the program; evaluation of the instruments used in these protocols; development of the data collection protocol in electronic format; a pilot study applying this protocol; and creation of the final version of the assessment protocol. In summary, the study details the methodological development of a protocol for evaluating a psychoeducational intervention, which can serve as a future example for future research in the development of similar assessment protocols.
Authors
- Déborah Oliveira (ORCID: https://orcid.org/0000-0002-6616-533X)
- Fabiana de Souza Orlandi (ORCID: https://orcid.org/0000-0002-5714-6890)
- Gustavo Carrijo Barbosa (ORCID: https://orcid.org/0000-0001-8670-1227)
- Anabel Machado Cardoso (ORCID: https://orcid.org/0000-0001-7410-7503)
- Elizabeth Joan Barham (ORCID: https://orcid.org/0000-0002-7270-4918)
- Sofía Cristina Iost Pavarini (ORCID: https://orcid.org/0000-0001-9359-8600)
- Luana Aparecida da Rocha (ORCID: https://orcid.org/0000-0002-6707-4982)
- Diana Quirino Monteiro (ORCID: https://orcid.org/0000-0002-3130-4096)
- Gabriela Martins (ORCID: https://orcid.org/0000-0002-3637-4763)
- Ludmyla Caroline de Souza Alves (ORCID: https://orcid.org/0000-0001-5507-702X)
- Keila Cristianne Trindade da Cruz (ORCID: https://orcid.org/0000-0001-8146-8323)
- Aline Cristina Martins Gratão (ORCID: https://orcid.org/0000-0002-8508-0251)
- Larissa Corrêa (ORCID: https://orcid.org/0000-0002-4596-4845)
- Ana Carolina Ottaviani (ORCID: https://orcid.org/0000-0003-4037-4587)
- Camila Rafael Ferreira Campos (ORCID: https://orcid.org/0000-0001-8700-153X)
Institutions
- Universidade de Brasília (BR)
- Universidade Federal de São Carlos (BR)
- Universidade Católica de Brasília (BR)
- Viña del Mar University (CL)
Publication Details
- Journal
- Geriatric Nursing
- Published
- 2025-08-20
- DOI
- https://doi.org/10.1016/j.gerinurse.2025.103591
- Primary Topic
- Dementia and Cognitive Impairment Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Ministry of Health
- Coordenação de Aperfeiçoamento de Pessoal de Nível Superior
- Conselho Nacional de Desenvolvimento Científico e Tecnológico