The HIdradenitis suppurativa DrainagE (HIDE) scale: development and content validation of a patient reported outcome measure
Drainage is a significant symptom of hidradenitis suppurativa (HS), impacting quality of life and causing emotional distress. The HiSTORIC initiative developed and content-validated a patient-reported outcome measure (PROM), incorporating a Numeric Rating Scale, to assess HS drainage through qualitative research with patients in Denmark and the USA. The PROM captures critical dimensions of ‘overall’ and ‘worst’ drainage levels, providing a standardized tool for clinical trials and potential integration into routine care, pending further validation.
Authors
- Joslyn S. Kirby (ORCID: https://orcid.org/0000-0002-6741-3796)
- Kari Zalik
- Terri Shih (ORCID: https://orcid.org/0000-0002-1606-1014)
- Noor Fatima Goandal (ORCID: https://orcid.org/0000-0003-1100-7534)
- Peter Theut Riis (ORCID: https://orcid.org/0000-0001-7723-8779)
- Linnea Thorlacius (ORCID: https://orcid.org/0000-0002-3734-9607)
- M. A. Khaled (ORCID: https://orcid.org/0000-0002-0866-9003)
- John R Ingram (ORCID: https://orcid.org/0000-0002-5257-1142)
- Bente Villumsen (ORCID: https://orcid.org/0000-0002-5176-2166)
- Jennifer Lin Hsiao (ORCID: https://orcid.org/0000-0002-8843-3630)
- Joseph Dowsett (ORCID: https://orcid.org/0000-0001-5381-2633)
- Amit Garg (ORCID: https://orcid.org/0000-0003-0886-6856)
- Hans Christian Ring (ORCID: https://orcid.org/0000-0002-6145-5549)
- C. G. Frederiksen (ORCID: https://orcid.org/0000-0002-4475-7617)
- Stine Thestrup Hansen (ORCID: https://orcid.org/0000-0002-3692-2723)
- Steven Daveluy (ORCID: https://orcid.org/0000-0002-6951-2894)
- Gregor B. E. Jemec (ORCID: https://orcid.org/0000-0002-0712-2540)
- Barry M. McGrath (ORCID: https://orcid.org/0000-0001-6995-7714)
- Rahul Masson
- Susanne de Goeij
Institutions
- University of Southern California (US)
- University of Copenhagen (DK)
- University of California, Los Angeles (US)
- University of Southern Denmark (DK)
- Wayne State University (US)
- Frederiksberg Hospital (DK)
- Copenhagen University Hospital (DK)
- Rigshospitalet (DK)
- Zealand University Hospital (DK)
- North Shore Diabetes and Endocrine Associates (US)
- The Patients Association (GB)
- Cardiff University (GB)
- Penn State Milton S. Hershey Medical Center (US)
- Incyte (United States) (US)
Publication Details
- Journal
- British Journal of Dermatology
- Published
- 2025-08-18
- DOI
- https://doi.org/10.1093/bjd/ljaf317
- Citations
- 2
- Primary Topic
- Hidradenitis Suppurativa and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 4.01