The ethics of self-experimentation: what is the right thing to do? Self-designed gene therapy
When faced with a serious diagnosis, many seek unevidenced therapies. What is the correct balance between supporting the autonomy of patients to experiment on themselves and doctors’ duty of care? Here we present a real-life situation that raises interesting and challenging issues of ethics, regulation and law.
Authors
- Ammar Al‐Chalabi (ORCID: https://orcid.org/0000-0002-4924-7712)
- Victoria Cox (ORCID: https://orcid.org/0000-0003-3852-7855)
- Thomas I. Cochrane (ORCID: https://orcid.org/0000-0003-4781-3167)
Institutions
- Harvard University (US)
- King's College London (GB)
- Center for Practical Bioethics (US)
- King's College Hospital (GB)
Publication Details
- Journal
- Brain
- Published
- 2025-08-16
- DOI
- https://doi.org/10.1093/brain/awaf258
- Primary Topic
- Biomedical and Engineering Education
- Type
- article
- Field-Weighted Citation Impact
- 0.00