Experience, Process, and Impact of Involving Informal Caregivers of People With Dementia as Public Contributors to Inform the Development of a Complex Intervention: A Mixed‐Methods Study
A PAG consisting of wives and daughters (n = 4) of people with dementia worked alongside the researchers throughout the intervention development phase of the project. Contributions included (1) sense-making and interpreting results from a series of intervention development studies, (2) co-designing the intervention, and (3) disseminating findings, including co-writing the current paper.
Authors
- Paul Farrand (ORCID: https://orcid.org/0000-0001-7898-5362)
- Frida Svedin (ORCID: https://orcid.org/0000-0002-8421-4908)
- Joanne Woodford (ORCID: https://orcid.org/0000-0001-5062-6798)
- Anders Brantnell (ORCID: https://orcid.org/0000-0001-6841-7644)
- Oscar Blomberg (ORCID: https://orcid.org/0000-0002-7472-5130)
- Anna Cristina Åberg (ORCID: https://orcid.org/0000-0001-8196-0553)
- Ida Österman Menander
- Theresia Lückner
- Kristina Sundelin
- Joan Turney
Institutions
- Dalarna University (SE)
- Uppsala University (SE)
- University of Exeter (GB)
Publication Details
- Journal
- Health Expectations
- Published
- 2025-08-01
- DOI
- https://doi.org/10.1111/hex.70382
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Vetenskapsrådet