“More Than Just the Two Percent”: The reproductive politics of envisioning abortion and miscarriage in Turner syndrome

Following the overturning of Roe v. Wade, the political, legal, and medical boundaries of spontaneous, elective, and selective abortion are blurring. Based on ethnographic research on Turner Syndrome, a genetic condition with a 98% miscarriage rate and uncertain abortion rates, this article examines the visual politics of reproduction and disability in the United States through the ambiguous treatment of miscarriage. Although infertile, my interlocutors with Turner syndrome emphasized how disability stereotypes, abortion unknowns, and miscarriage statistics impacted their lives. Centering our play More Than Just the Two Percent, I demonstrate how my interlocutors embodied various actors in reproductive experiences, including miscarried fetuses, to navigate the visibilities of their diagnosis and specify the value of their lives as social funds of knowledge-a process I term envisioning. Envisioning complicates notions of viability, personhood, privacy, spirituality, risk, luck, and survivorship that pro-life/pro-choice rhetorics flatten and may contribute to a more disability-oriented reproductive justice.

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Publication Details

Journal
Medical Anthropology Quarterly
Published
2025-08-18
DOI
https://doi.org/10.1111/maq.70022
Primary Topic
Reproductive Health and Technologies
Type
article
Field-Weighted Citation Impact
0.00

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article

“More Than Just the Two Percent”: The reproductive politics of envisioning abortion and miscarriage in Turner syndrome

Adam Jones
Medical Anthropology Quarterly
Reproductive Health and Technologies
article

“More Than Just the Two Percent”: The reproductive politics of envisioning abortion and miscarriage in Turner syndrome

Adam Jones
article en

Abstract

Following the overturning of Roe v. Wade, the political, legal, and medical boundaries of spontaneous, elective, and selective abortion are blurring. Based on ethnographic research on Turner Syndrome, a genetic condition with a 98% miscarriage rate and uncertain abortion rates, this article examines the visual politics of reproduction and disability in the United States through the ambiguous treatment of miscarriage. Although infertile, my interlocutors with Turner syndrome emphasized how disability stereotypes, abortion unknowns, and miscarriage statistics impacted their lives. Centering our play More Than Just the Two Percent, I demonstrate how my interlocutors embodied various actors in reproductive experiences, including miscarried fetuses, to navigate the visibilities of their diagnosis and specify the value of their lives as social funds of knowledge-a process I term envisioning. Envisioning complicates notions of viability, personhood, privacy, spirituality, risk, luck, and survivorship that pro-life/pro-choice rhetorics flatten and may contribute to a more disability-oriented reproductive justice.

Medical Anthropology QuarterlyVol. 39(4)
Washington University in St. Louis (US)
National Science Foundation
Openalex Percentile: Top 71%
Reproductive Health and Technologies
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