Self-management in youth with spina bifida: predictors of health and quality of life outcomes
This study identified factors important to consider for better health and QOL in populations living with disabilities. As youth enter adult-oriented care, models of care must address declining mental health and provide gender-specific adaptive interventions to increase independent living self-management. As participants gain more independence in self-management, they appear to exhibit reduced risk of comorbid conditions and improvements in their individual health-related QOL and family QOL.
Authors
- Kathleen J. Sawin (ORCID: https://orcid.org/0000-0003-2884-3248)
- Monique M. Ridosh (ORCID: https://orcid.org/0000-0002-2621-6710)
- William Adams (ORCID: https://orcid.org/0000-0002-5608-3808)
- Grayson N. Holmbeck (ORCID: https://orcid.org/0000-0002-2216-1927)
- Fabiola Magaña
Institutions
- Children's Hospital of Wisconsin (US)
- Loyola University Chicago (US)
- Evidence Based Research (United States) (US)
- University of Wisconsin–Milwaukee (US)
Publication Details
- Journal
- Disability and Rehabilitation
- Published
- 2025-08-14
- DOI
- https://doi.org/10.1080/09638288.2025.2547396
- Primary Topic
- Spinal Dysraphism and Malformations
- Type
- article
- Field-Weighted Citation Impact
- 0.00