How well are marginalised groups represented in electronic records? A codelist development project and cross-sectional analysis of UK electronic health records
The curated codelists are more sensitive than those widely used in practice and research. Discrepancies between national estimates and primary care records suggest potential record/retention issues. Resolving these requires further investigation and could lead to improved data quality for research.
Authors
- Luke Mounce (ORCID: https://orcid.org/0000-0002-6089-0661)
- Brian David Nicholson (ORCID: https://orcid.org/0000-0003-0661-7362)
- Kate Sykes (ORCID: https://orcid.org/0000-0002-2942-7193)
- Robert Kerrison (ORCID: https://orcid.org/0000-0002-8900-749X)
- Isabella de Vere Hunt (ORCID: https://orcid.org/0000-0002-4238-0924)
- Katriina L. Whitaker (ORCID: https://orcid.org/0000-0002-0947-1840)
- Georgios Lyratzopoulos (ORCID: https://orcid.org/0000-0002-2873-7421)
- Agnieszka Lemańska (ORCID: https://orcid.org/0000-0003-4849-2430)
- Tetyana Perchyk
Institutions
- National Physical Laboratory (GB)
- University of Exeter (GB)
- University of Surrey (GB)
- Northumbria University (GB)
- University of Oxford (GB)
- University College London (GB)
Publication Details
- Journal
- BMJ Open
- Published
- 2025-08-01
- DOI
- https://doi.org/10.1136/bmjopen-2024-098305
- Primary Topic
- Chronic Disease Management Strategies
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institute for Health and Care Research
- National Physical Laboratory