Guiding principles for adult CNS tumor treatment programs
Central nervous system (CNS) tumors require specialized care to promote better patient survival outcomes and life quality. Before this paper, there were no published guidelines identifying what constitutes specialized, comprehensive CNS tumor treatment and care in the United States. Consequently, members of several CNS tumor patient advocacy and not-for-profit organizations established a set of Guiding Principles by which adult CNS tumor treatment programs could be evaluated for the availability of specialized services offered. These Guiding Principles for CNS tumor treatment programs are the first tool of its kind in the United States. Patient advocacy and not-for-profit organizations that support the CNS tumor population can use these guiding principles to help patients and their loved ones make more informed decisions about where to seek treatment and care.
Authors
- Jeffrey Scott Wefel (ORCID: https://orcid.org/0000-0003-3584-023X)
- Kimberly Wallgren
- Al Musella (ORCID: https://orcid.org/0000-0002-5502-1541)
- Vinai Gondi
- Jean Arzbaecher
- Matt Anthony
- Jennifer S. Yu
- Manmeet S. Ahluwalia (ORCID: https://orcid.org/0000-0003-3794-9511)
- Vinay K. Puduvalli (ORCID: https://orcid.org/0000-0001-8396-9500)
- Danielle Leach
- Ralph DeVitto
- Alissa A. Thomas (ORCID: https://orcid.org/0000-0002-0487-9062)
- Nicole E. Willmarth (ORCID: https://orcid.org/0000-0002-6454-8396)
- Gabriel Zada (ORCID: https://orcid.org/0000-0001-5821-902X)
- Ashlee R. Loughan (ORCID: https://orcid.org/0000-0003-1231-2469)
- Mindy Freund (ORCID: https://orcid.org/0000-0001-9620-7046)
- Kendra Paabo (ORCID: https://orcid.org/0009-0009-3866-7162)
- Erin Dunbar
- G. Wilson Shaffer
- David Arons
- Vincent Rock
- Shanu Khanuja
- Catherine Fraher
Institutions
- Northwestern University (US)
- University of Southern California (US)
- Baptist Hospital of Miami (US)
- CURE International UK (GB)
- Cleveland Clinic (US)
- American Hospital Association (US)
- The University of Texas MD Anderson Cancer Center (US)
- Virginia Commonwealth University (US)
- Piedmont Atlanta Hospital (US)
- University of Vermont Medical Center (US)
- American Brain Tumor Association (US)
- Pancreatic Cancer Action Network (US)
- Brain Tumour Charity (GB)
- University of Illinois Chicago (US)
- University of Chicago Medical Center (US)
- Baptist Health South Florida (US)
- Commonwealth Cancer Center (US)
- Southeastern Brain Tumor Foundation (US)
- Northwestern Medicine (US)
- Musella Foundation For Brain Tumor Research and Information (US)
- National Brain Tumor Society (US)
Publication Details
- Journal
- Neuro-Oncology Advances
- Published
- 2025-01-01
- DOI
- https://doi.org/10.1093/noajnl/vdaf169
- Primary Topic
- Glioma Diagnosis and Treatment
- Type
- article
- Field-Weighted Citation Impact
- 0.00