Engaging Under‐Represented Adolescents and Young Adults in Cancer Research: A Qualitative Exploration of Lived Experiences and Engagement Strategies
Our findings inform inclusive strategies for future studies to ensure the voices of all AYAs with cancer are represented in research. This study also highlights the importance of CBPR and the positive impact of knowledge derived from lived experiences in shaping research processes and outcomes.
Authors
- Sapna Oberoi (ORCID: https://orcid.org/0000-0002-6071-0042)
- Fiona Schulte (ORCID: https://orcid.org/0000-0002-3076-9676)
- Sheila N. Garland (ORCID: https://orcid.org/0000-0002-6119-318X)
- Jenny Duong (ORCID: https://orcid.org/0009-0006-3333-9045)
- Tristan Bilash (ORCID: https://orcid.org/0009-0007-3798-2254)
- K.P. Hanson
- Jacqueline L. Bender (ORCID: https://orcid.org/0000-0003-1501-335X)
- Brianna Henry (ORCID: https://orcid.org/0000-0002-6872-7615)
- Iqra Rahamatullah
- Caitlin Forbes
- Perri R. Tutelman (ORCID: https://orcid.org/0000-0001-6013-7402)
- Sharon Hou (ORCID: https://orcid.org/0000-0001-5828-6820)
Institutions
- Memorial University of Newfoundland (CA)
- University of Calgary (CA)
- Simon Fraser University (CA)
- University of Toronto (CA)
- Alberta Children's Hospital (CA)
- Princess Margaret Cancer Centre (CA)
- CancerCare Manitoba (CA)
- Children's Hospital Research Institute of Manitoba (CA)
- Public Health Ontario (CA)
- BC Children's Hospital (CA)
- University of Manitoba (CA)
Publication Details
- Journal
- Cancer Medicine
- Published
- 2025-08-01
- DOI
- https://doi.org/10.1002/cam4.71086
- Citations
- 2
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 6.99
Funders
- University of Calgary
- Canadian Psychological Association