Understanding gaps in guideline-recommended adult congenital heart disease care: Data from 12 US health care centers
Three-quarters of adults with CHD experienced gaps in specialized ACHD care while receiving services at high volume comprehensive tertiary health centers. To address these gaps, interventions such as fostering physician collaboration within tertiary centers might be needed, and targeted to patients with less severe CHD, nonphysiologic class conditions, and those aged 40+ years.
Authors
- Thomas W. Carton (ORCID: https://orcid.org/0000-0003-0059-1990)
- Adam M. Lubert (ORCID: https://orcid.org/0000-0001-6401-9980)
- Mark Roeder
- Lindsey Rudov (ORCID: https://orcid.org/0000-0002-3257-520X)
- Joseph Bayne
- Dan G. Halpern (ORCID: https://orcid.org/0000-0002-1656-798X)
- Matthew Lewis (ORCID: https://orcid.org/0000-0002-8991-0638)
- Emily Ruckdeschel
- Arwa Saidi (ORCID: https://orcid.org/0009-0005-9032-3157)
- Satinder Sandhu (ORCID: https://orcid.org/0000-0001-7348-7284)
- Rittal Mehta (ORCID: https://orcid.org/0000-0002-0807-4763)
- Scott Leezer
- Roni Jacobsen (ORCID: https://orcid.org/0000-0002-3851-9786)
- Harsimran Singh (ORCID: https://orcid.org/0000-0001-6645-3115)
- Anitha S. John (ORCID: https://orcid.org/0000-0002-7355-6304)
- Anushree Agarwal (ORCID: https://orcid.org/0000-0001-8535-3152)
- Ali N. Zaidi (ORCID: https://orcid.org/0000-0001-8255-1591)
- Jamie L. Jackson (ORCID: https://orcid.org/0000-0002-1752-1377)
- Sneha Saraf
- Thomas Young (ORCID: https://orcid.org/0000-0002-2103-6585)
- Ruth Phillippi
- Ronald J. Kanter
- Rong Duan
Institutions
- Cincinnati Children's Hospital Medical Center (US)
- Nationwide Children's Hospital (US)
- Children's Hospital of Philadelphia (US)
- Ochsner Health System (US)
- Children's National (US)
- University of Miami (US)
- University of California, San Francisco (US)
- Cornell University (US)
- Columbia University Irving Medical Center (US)
- University of Florida (US)
- NYU Langone Health (US)
- Children's Hospital Colorado (US)
- Presbyterian Hospital (US)
- Mount Sinai Hospital (US)
- Louisiana Public Health Institute (US)
- Adult Congenital Heart Association (US)
- Institute for Global Environmental Strategies (US)
- Miami Children's Hospital (US)
- University of Colorado Denver (US)
Publication Details
- Journal
- American Heart Journal
- Published
- 2025-08-08
- DOI
- https://doi.org/10.1016/j.ahj.2025.08.002
- Citations
- 1
- Primary Topic
- Congenital Heart Disease Studies
- Type
- article
- Field-Weighted Citation Impact
- 1.35