Caregiver perspectives on barriers and facilitators to pediatric intestinal failure quality of life
Caregivers offer valuable insight into the barriers and facilitators of their child's QOL within the context of intestinal failure. Multidisciplinary interventions aimed at supporting families as they adapt to their own unique lifestyle may significantly enhance quality of life for both children and caregivers.
Authors
- Beverly Kosmach‐Park (ORCID: https://orcid.org/0009-0005-1689-2669)
- Janel Hanmer (ORCID: https://orcid.org/0000-0001-6159-2482)
- Daniela Gattini (ORCID: https://orcid.org/0000-0001-8013-2350)
- Vikram Raghu (ORCID: https://orcid.org/0000-0002-6555-9732)
- Flor de Abril Cameron (ORCID: https://orcid.org/0000-0002-4079-4744)
- Lisa Lakkis
- Claire Josey (ORCID: https://orcid.org/0000-0001-8247-1997)
Institutions
- University of Pittsburgh (US)
- University of Toronto (CA)
- Hospital for Sick Children (CA)
- Children's Hospital of Pittsburgh (US)
- SickKids Foundation (CA)
Publication Details
- Journal
- Intestinal failure.
- Published
- 2025-04-01
- DOI
- https://doi.org/10.1016/j.intf.2025.100302
- Primary Topic
- Child Nutrition and Feeding Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- North American Society for Pediatric Gastroenterology, Hepatology and Nutrition
- National Institutes of Health
- NASPGHAN Foundation
- National Center for Advancing Translational Sciences