Experiences and expectations of advance directives in gynecological cancer patients (the NOGGO-expression X study)
This study highlights a substantial need for enhanced information and proactive discussions about end-of-life care among patients with gynecological malignancies, particularly emphasizing the pivotal role of family doctors in these conversations. Notably, women with migration backgrounds are disproportionately disadvantaged in accessing and understanding advance directives, underscoring the urgent need for information and documents about advance directives in their native language. It is therefore recommended that the medical team routinely and proactively address these relevant topics in discussions with their patients and that clinical guidelines should also reflect this.
Authors
- Annette Hasenburg (ORCID: https://orcid.org/0000-0002-1547-4968)
- Mandy Mangler (ORCID: https://orcid.org/0000-0003-0874-5376)
- Erdin İlter
- Anne Letsch
- Murat Karaman
- Bahriye Aktas (ORCID: https://orcid.org/0000-0002-5474-051X)
- Jana Barinoff (ORCID: https://orcid.org/0000-0003-3813-9270)
- Pauline Wimberger (ORCID: https://orcid.org/0000-0002-7380-577X)
- Adak Pirmorady-Sehouli
- Melisa Guelhan Inci (ORCID: https://orcid.org/0000-0002-3871-7440)
- Helmut Plett (ORCID: https://orcid.org/0000-0001-7518-5861)
- Eva Roser (ORCID: https://orcid.org/0000-0002-9365-1595)
- Desislava Dimitrova (ORCID: https://orcid.org/0000-0003-4228-5158)
- Volker Hanf
- Ute Goerling (ORCID: https://orcid.org/0000-0001-8157-3836)
- Cindy Stoklossa
- Philipp Harter
- Sven� Mahner (ORCID: https://orcid.org/0000-0002-2224-5709)
- Nicolai Maass
- Jalid Sehouli
- Barbara Schmalfeldt
- Malgorzata Lanowska
- Doris Mayr
- Guelten Oskay-Oezcelik
- Reema Kofiah
Institutions
- Statistisches Bundesamt (DE)
- Universität Hamburg (DE)
- Johannes Gutenberg University Mainz (DE)
- LMU Klinikum (DE)
- Humboldt-Universität zu Berlin (DE)
- Klinik für Frauenheilkunde (DE)
- University Medical Center of the Johannes Gutenberg University Mainz (DE)
- Auguste-Viktoria-Klinik (DE)
- University Medical Center Hamburg-Eppendorf (DE)
- Vivantes Klinikum (DE)
- National Center for Tumor Diseases (DE)
- University Hospital Schleswig-Holstein (DE)
- Berlin Institute of Health at Charité - Universitätsmedizin Berlin (DE)
- Kliniken Essen-Mitte (DE)
- Deutsche Rentenversicherung Bund (DE)
- Fuchu Hospital (JP)
- Technische Universität Dresden (DE)
- Charité - Universitätsmedizin Berlin (DE)
- Ludwig-Maximilians-Universität München (DE)
- Leipzig University (DE)
- University of Lübeck (DE)
Publication Details
- Journal
- International Journal of Gynecological Cancer
- Published
- 2025-07-19
- DOI
- https://doi.org/10.1016/j.ijgc.2025.102008
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00