Ethical and regulatory requirements for conducting researcher-driven large-scale multinational genetic haematological studies: the INHERENT experience
Such heterogeneity challenges the scientific community in conducting these genetic studies. This study calls for further efforts to harmonize international standards for genetic research.
Authors
- Fedele Bonifazi (ORCID: https://orcid.org/0000-0003-4935-5702)
- Petros Kountouris (ORCID: https://orcid.org/0000-0003-2681-4355)
- Viviana Giannuzzi (ORCID: https://orcid.org/0000-0002-2534-6783)
- Esther Gani (ORCID: https://orcid.org/0000-0001-8077-5196)
- Antonella Didio (ORCID: https://orcid.org/0000-0001-9041-9400)
- Natasha M. Archer (ORCID: https://orcid.org/0000-0002-6460-5872)
- Emmanuel Peprah (ORCID: https://orcid.org/0000-0002-0495-7016)
- Sabina Sblano
Institutions
- Kaduna State University (NG)
- Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus (IT)
- Cyprus Institute of Neurology and Genetics (CY)
- New York University (US)
Publication Details
- Journal
- Health Research Policy and Systems
- Published
- 2025-08-05
- DOI
- https://doi.org/10.1186/s12961-025-01375-z
- Citations
- 2
- Primary Topic
- Ethics and Legal Issues in Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 6.99