Differences in Patient and Parent Preferences for Prognostic Communication Across Disease Milestones in Advanced Childhood Cancer
These findings highlight the dynamic nature of prognostic communication preferences across the illness trajectory and key variances between AYA and parents' preferences. Early and serial prognostic conversations are welcomed by many AYAs and parents, and multidisciplinary support may enhance communication satisfaction, particularly as preferences shift over time. Future research will investigate longitudinal interventions that recognize evolving communication preferences to personalize prognostic disclosure across pediatric cancer care.
Authors
- Justin Nathaniel Baker (ORCID: https://orcid.org/0000-0002-6584-6483)
- Erica C. Kaye (ORCID: https://orcid.org/0000-0002-6522-3876)
- Pamela S. Hinds (ORCID: https://orcid.org/0000-0001-6491-6649)
- Shoshana Mehler
- Jennifer W. Mack (ORCID: https://orcid.org/0000-0001-5791-4178)
- Caroline Christianson
- Rachel Kentor (ORCID: https://orcid.org/0000-0002-5287-6253)
- Tara M. Brinkman (ORCID: https://orcid.org/0000-0002-4250-6160)
- Harmony Farner
Institutions
- St. Jude Children's Research Hospital (US)
- Children's National (US)
- George Washington University (US)
- NYU Langone Health (US)
- Stanford Health Care (US)
- Children's Health Council (US)
- Dana-Farber Cancer Institute (US)
- Texas Children's Hospital (US)
Publication Details
- Journal
- Pediatric Blood & Cancer
- Published
- 2025-08-04
- DOI
- https://doi.org/10.1002/pbc.31964
- Citations
- 3
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 10.48
Funders
- American Lebanese Syrian Associated Charities
- National Cancer Institute