The Lived Experience of Pain Services: A Comparison of Service Users’ and Service Providers’ Experience of Irish Health Services
<b>Background:</b> A supportive healthcare experience that implements a biopsychosocial model of care can empower a person with chronic pain to make informed decisions and engage in self-management behaviours. Despite the positive influence of supportive healthcare, little is known about the presence of healthcare support in under-resourced chronic pain services. This idiographic study explores the lived experience of service users and providers participating in chronic pain services with a specific focus on autonomy support and self-management skills. <b>Methods:</b> Semistructured interviews were conducted on service users (<i>n</i> = 7) self-reporting a diagnosis of chronic pain (pain > 3 months) and service providers (<i>n</i> = 5), defined as healthcare professionals with > 3 years of experience in clinical healthcare settings managing pain conditions. All interviews took place online (mean 47 ± 11 min). Interview transcripts were analysed using interpretative phenomenological analysis. <b>Results:</b> Analyses generated four themes: 'biomedical model leads care'; 'lost in a system'; 'I need support' and 'the essentials of self-management'. Both service users and providers described regular experiences of invalidation and biomedical approaches to pain management. Long waitlists, a lack of multidisciplinary services, short appointment times and a lack of educational resources all impacted the development of self-management skills in service users. <b>Conclusion:</b> Despite clinical guidelines recommending a biopsychosocial model of care, the biomedical model remains the dominant approach in chronic pain management, reflecting a persistent gap between evidence and practice. Service users and providers desire access to multidisciplinary services that support a biopsychosocial model of care. Healthcare professionals cannot deliver what service users expect due to macro-, meso- and microlevel factors. Future research is needed to explore practical solutions to deliver pain services that optimise the development of self-management skills where existing infrastructure and resources negatively impact service delivery. Suggested approaches include enhancing autonomy-supportive communication by healthcare providers and ensuring early access to high-quality educational materials.
Authors
- Áine MacNamara (ORCID: https://orcid.org/0000-0002-8110-6784)
- Kate Sheridan (ORCID: https://orcid.org/0009-0006-9245-1416)
- Enda Francis Whyte (ORCID: https://orcid.org/0000-0002-9458-9498)
- Siobhán O’Connor (ORCID: https://orcid.org/0000-0002-2001-0746)
Institutions
- Dublin City University (IE)
Publication Details
- Journal
- Pain Research and Management
- Published
- 2025-01-01
- DOI
- https://doi.org/10.1155/prm/4608906
- Citations
- 1
- Primary Topic
- Musculoskeletal pain and rehabilitation
- Type
- article
- Field-Weighted Citation Impact
- 1.39