Healthcare access, symptom burden, and psychological impact in hypertrophic cardiomyopathy: a multinational patient-driven survey
This survey highlights critical gaps in HCM management, including healthcare accessibility, persistent symptom burden, and unmet psychological needs. Improved care pathways, mental health integration, and workplace accommodations are essential to enhance patient-centered HCM management across Europe.
Authors
- Jolanda van der Velden (ORCID: https://orcid.org/0000-0001-5224-5788)
- Maurizio Pieroni (ORCID: https://orcid.org/0000-0002-6830-4292)
- Niccolò Maurizi (ORCID: https://orcid.org/0000-0001-5819-204X)
- Iacopo Olivotto
- Matteo Pinciroli
- Franco Cecchi (ORCID: https://orcid.org/0000-0002-2035-5621)
- Emil Tsenov
Institutions
- Centre Hospitalier Universitaire Vaudois (CH)
- European Association of Nuclear Medicine (AT)
- Italian Society of Physiotherapy (IT)
- Meyer Children's Hospital (IT)
- Azienda Ospedaliero-Universitaria Careggi (IT)
- Amsterdam University Medical Centers (NL)
- Vrije Universiteit Amsterdam (NL)
- University of Lausanne (CH)
Publication Details
- Journal
- International Journal of Cardiology Cardiovascular Risk and Prevention
- Published
- 2025-08-04
- DOI
- https://doi.org/10.1016/j.ijcrp.2025.200485
- Citations
- 1
- Primary Topic
- Cardiomyopathy and Myosin Studies
- Type
- article
- Field-Weighted Citation Impact
- 1.39