The primary caregiver of the palliative care patient – the hidden patient of the family physician

Palliative care aims at improving the quality of life for patients and their families who are dealing with life-threate­ning illnesses. In Romania, most patients re­quiring pal­lia­tive care are looked after at home by a pri­mary care­giver, typically an unpaid family member. This study exa­mined the impact of caregiving on primary care­givers, in­vol­ving 140 patient-caregiver pairs, with on­co­lo­gi­cal and non-oncological conditions. The findings in­di­cate that pri­mary caregivers of non-oncological pa­tients ex­pe­rience sig­ni­fi­cantly greater physical and emo­tio­nal bur­dens compared to caregivers of cancer pa­tients. Over half of caregivers exhibited moderate to severe anxiety, and de­pres­sion was identified in ap­pro­xi­mately half of them. Caregiver burden and associated emo­tio­nal disorders are influenced by the severity of the pa­tient’s condition and the duration from diagnosis to the initiation of palliative care. Early iden­ti­fi­ca­tion of these challenges allows for timely medical in­ter­ven­tions aimed at preserving the health and quality of life of primary caregivers.

Authors

Publication Details

Journal
Medic ro
Published
2025-01-01
DOI
https://doi.org/10.26416/med.163.1.2025.10658
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
Field-Weighted Citation Impact
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article

The primary caregiver of the palliative care patient – the hidden patient of the family physician

Ștefan Ursu, Cristina-Paula Ursu, R. Pop
Medic ro
Palliative Care and End-of-Life Issues
article

The primary caregiver of the palliative care patient – the hidden patient of the family physician

Ștefan Ursu, Cristina-Paula Ursu, R. Pop
article en

Abstract

Palliative care aims at improving the quality of life for patients and their families who are dealing with life-threate­ning illnesses. In Romania, most patients re­quiring pal­lia­tive care are looked after at home by a pri­mary care­giver, typically an unpaid family member. This study exa­mined the impact of caregiving on primary care­givers, in­vol­ving 140 patient-caregiver pairs, with on­co­lo­gi­cal and non-oncological conditions. The findings in­di­cate that pri­mary caregivers of non-oncological pa­tients ex­pe­rience sig­ni­fi­cantly greater physical and emo­tio­nal bur­dens compared to caregivers of cancer pa­tients. Over half of caregivers exhibited moderate to severe anxiety, and de­pres­sion was identified in ap­pro­xi­mately half of them. Caregiver burden and associated emo­tio­nal disorders are influenced by the severity of the pa­tient’s condition and the duration from diagnosis to the initiation of palliative care. Early iden­ti­fi­ca­tion of these challenges allows for timely medical in­ter­ven­tions aimed at preserving the health and quality of life of primary caregivers.

Medic roVol. 163(1)
Openalex Percentile: Top 74%
Palliative Care and End-of-Life Issues
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