The role of community advisory boards in enhancing recruitment and retention in Alzheimer's disease and related dementia research in Africa: Experience from the READD‐ADSP study

The Recruitment and Retention of Alzheimer's Disease Diversity Genetic Cohorts in the Alzheimer's Disease Sequencing Project (READD-ADSP) project utilizes a community-engaged research (CER) framework to develop a community engagement program and establish Community Advisory Boards (CABs) to enhance participant recruitment and retention. There is a need to standardize CER practices and promote context-sensitive and culturally appropriate CE activities across African Dementia Consortium (AfDC) sites to ensure cultural sensitivity and enhance recruitment and retention. The project seeks to empower CABs to promote national dementia policies by collaborating with policy-makers and advancing equitable dementia scienced and care in Africa.

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Publication Details

Journal
Alzheimer s & Dementia
Published
2025-07-30
DOI
https://doi.org/10.1002/alz.70529
Citations
1
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
1.88
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article

The role of community advisory boards in enhancing recruitment and retention in Alzheimer's disease and related dementia research in Africa: Experience from the READD‐ADSP study

Noeline Nakasujja, Osimhiarherhuo Adeleye, Alfred K. Njamnshi, Stella‐Maria Paddick et al.
1 citations
Alzheimer s & Dementia
Ethics in Clinical Research
1.88
article

The role of community advisory boards in enhancing recruitment and retention in Alzheimer's disease and related dementia research in Africa: Experience from the READD‐ADSP study

Noeline Nakasujja, Osimhiarherhuo Adeleye, Alfred K. Njamnshi, Stella‐Maria Paddick, Michelle Nichols, Eniola Cadmus, Sudha S. Seshadri, Kamada Lwere, Jean Ikanga, Oyedunni Arulogun, Joy Onoria, Paul Olowoyo, Rufus Akinyemi, Adefolakemi Temitope Ogundele, Olorunyomi Olorunsogbon, Ifeoma Adaigwe Amaechi, Godwin Osaigbovo, Benedict Calys‐Tagoe, Mayowa Ojo Owolabi, Godspower Chibuike Onunka, Goldie S. Byrd, Biniyam A. Ayele, Mayowa Ogunronbi, Solomon Gyabaah, Olufisayo Elugbadebo, Emmanuel Iwuozo, Kolawole Wahab, Adedoyin Ogunyemi, Christine Musyimi, Walker Richard, Raj N. Kalaria, Abiodun Bello, Damas Andrea, Judith Boshe, Olusegun Baiyewu, Babatunde Raphael Ojebuyi, Reginald Obiako, Nosakhare Osemwegie, Temitope Farombi, Albert Akpalu, Margaret A. Pericak‐Vance, Yared Z. Zewde, Wepnyu Yembe Njamnshi, Fred Stephen Sarfo, Victoria Mutiso, Muhammed Mubashir B Uthman, Thierry Adoukonou, Njideka Okubadejo, Paul Nwani, Ernest Nwazor, Albertino Antonio Moura Damasceno, Taofeek Adedayo Sanni, David M. Ndetei, Adesola Ogunniyi, Daniel Eje Ukpabi, Nathaniel Coleman, Abdullateef Sule, Afolaranmi Tolulope, Innocent Mwombeki, Tsimona Dinku, Obo Y. Onibon, Hypolite O. Ezin, Oyedolapo Oyedola
article en
1 citations

Abstract

The Recruitment and Retention of Alzheimer's Disease Diversity Genetic Cohorts in the Alzheimer's Disease Sequencing Project (READD-ADSP) project utilizes a community-engaged research (CER) framework to develop a community engagement program and establish Community Advisory Boards (CABs) to enhance participant recruitment and retention. There is a need to standardize CER practices and promote context-sensitive and culturally appropriate CE activities across African Dementia Consortium (AfDC) sites to ensure cultural sensitivity and enhance recruitment and retention. The project seeks to empower CABs to promote national dementia policies by collaborating with policy-makers and advancing equitable dementia scienced and care in Africa.

Alzheimer s & DementiaVol. 21(8)
University of Port Harcourt (NG), Ahmadu Bello University (NG), University of Nairobi (KE), World Health Organization - Pakistan (PK), Ekiti State University (NG), Université de Yaoundé I (CM), University of Ilorin (NG), Medical University of South Carolina (US), University of Jos (NG), Eduardo Mondlane University (MZ), Christian Medical College, Vellore (IN), University of Ibadan (NG), Benue State University (NG), University of Lagos (NG), Nnamdi Azikiwe University (NG), North Tyneside General Hospital (GB), Komfo Anokye Teaching Hospital (GH), University of Port Harcourt Teaching Hospital (NG), Federal Neuro Psychiatric Hospital (NG), University College Hospital, Ibadan (NG), Korle Bu Teaching Hospital (GH), Kwame Nkrumah University of Science and Technology (GH), The University of Dodoma (TZ), Afe Babalola University (NG), University of Kinshasa (CD), Gateshead Health NHS Foundation Trust (GB), Institute for Neurodegenerative Disorders (US), Université de Parakou (BJ), Université Catholique du Congo (CD), Ahmadu Bello University Teaching Hospital (NG), Dr. John T. Macdonald Foundation (US), NIHR Newcastle Biomedical Research Centre (GB), Kilimanjaro Christian Medical Centre (TZ), Federal Medical Centre (NG), Africa Mental Health Foundation (KE), Nnamdi Azikiwe University Teaching Hospital (NG), Jos University Teaching Hospital (NG), Newcastle Hospitals - Campus for Ageing and Vitality (GB), University of Ilorin Teaching Hospital (NG), Addis Ababa University (ET), Wake Forest University (US), Makerere University (UG), Olabisi Onabanjo University (NG), Rivers State University (NG)
Partnerships for the goals
Openalex Percentile: Top 13%
Ethics in Clinical Research
1.88
DOIOpen Access PDFOpenAlex
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