Where did they go? Describing and reengaging people with HIV lost to follow-up in the PISCIS Cohort Study

Reengaging patients lost to follow-up (LTFU) is crucial to achieving the UNAIDS 95-95-95 targets. This study analyses an intervention aimed at identifying and reengaging LTFU individuals in the PISCIS Cohort in Catalonia. The cohort included 28,033 people living with HIV (PLWH) across 17 hospitals in Catalonia and two in the Balearic Islands as of 2021. LTFU was defined as no contact with HIV care in any Catalan hospital for ≥12 months between June 2021 and January 2010. At four hospitals, suspected LTFU cases were confirmed through clinical records and followed up via phone calls, text messages and emails. Confirmed cases were invited to reengage in care. A total of 1,411 suspected LTFU individuals were studied. Compared to those in regular follow-up, LTFU individuals were more often male, aged 30-39, born outside Spain (64.8%) and men who have sex with men (70.4%). Of these, 27.3% could not be located, with a higher proportion born outside Spain (74.8% vs. 61.0%). Reengagement rates were low, though older individuals and women were more likely to reengage. These findings underscore the importance of accurate cohort records, systematic tracking and targeted strategies to reengage hard-to-reach LTFU patients.

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Publication Details

Journal
AIDS Care
Published
2025-07-26
DOI
https://doi.org/10.1080/09540121.2025.2534111
Primary Topic
HIV/AIDS Research and Interventions
Type
article
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article

Where did they go? Describing and reengaging people with HIV lost to follow-up in the PISCIS Cohort Study

Sergio Moreno‐Fornés, Josep M. Miró, Jorge Palacio‐Vieira, Pere Domingo et al.
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HIV/AIDS Research and Interventions
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Where did they go? Describing and reengaging people with HIV lost to follow-up in the PISCIS Cohort Study

Sergio Moreno‐Fornés, Josep M. Miró, Jorge Palacio‐Vieira, Pere Domingo, Paula Suanzes, Josep M. Llibre, Hernando Knobel, Iván Chivite, Arkaitz Imaz, Lizza Macorigh, Antoni A Campins, Arantzazu Mera, Juliana Reyes‐Urueña, Yesika Díaz, Andreu Bruguera, Jordi Casabona, Gemma Navarro
article en

Abstract

Reengaging patients lost to follow-up (LTFU) is crucial to achieving the UNAIDS 95-95-95 targets. This study analyses an intervention aimed at identifying and reengaging LTFU individuals in the PISCIS Cohort in Catalonia. The cohort included 28,033 people living with HIV (PLWH) across 17 hospitals in Catalonia and two in the Balearic Islands as of 2021. LTFU was defined as no contact with HIV care in any Catalan hospital for ≥12 months between June 2021 and January 2010. At four hospitals, suspected LTFU cases were confirmed through clinical records and followed up via phone calls, text messages and emails. Confirmed cases were invited to reengage in care. A total of 1,411 suspected LTFU individuals were studied. Compared to those in regular follow-up, LTFU individuals were more often male, aged 30-39, born outside Spain (64.8%) and men who have sex with men (70.4%). Of these, 27.3% could not be located, with a higher proportion born outside Spain (74.8% vs. 61.0%). Reengagement rates were low, though older individuals and women were more likely to reengage. These findings underscore the importance of accurate cohort records, systematic tracking and targeted strategies to reengage hard-to-reach LTFU patients.

AIDS CareVol. 37(11)
Generalitat de Catalunya (ES), Instituto de Salud Carlos III (ES), Hospital de Sant Pau (ES), Bellvitge University Hospital (ES), Institut d'Investigació Biomédica de Bellvitge (ES), Hospital General de Granollers (ES), Corporació Sanitària Parc Taulí (ES), Vall d'Hebron Hospital Universitari (ES), Hospital Del Mar (ES), Institut d'Investigació en Ciències de la Salut Germans Trias i Pujol (ES), Hospital Universitario Son Espases (ES), Hospital Universitari Germans Trias i Pujol (ES), Centro de Investigación Biomédica en Red de Epidemiología y Salud Pública (ES), Hospital de Palamós (ES), Universitat de Barcelona (ES)
Openalex Percentile: Top 77%
HIV/AIDS Research and Interventions
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