Putting Patients First: Insights from the Specialized Working Group Session on Quality of Life in Haematology

OVER the past decades, haematology has made great progress in understanding disease mechanisms, developing objective diagnostic criteria, and introducing new treatment options. However, during this period, the ‘subjective’ part of the patient’s follow-up, including personal experience such as symptoms, side effects, and perceptions about treatment, has often been overlooked. Clinicians have mainly focused on measurable medical outcomes, and there has been little time or space to address the subjective aspects of care. Today, this situation is beginning to change.