Neuropsychological assessment practices in PRECISION-ALS: challenges and opportunities for harmonization
These findings illustrate areas of commonality and divergence in neuropsychological screening practices. Site-specific variations are likely to confound research involving cross-country data-sharing. PRECISION-ALS, in generating prospective population-based datasets, will provide agreed harmonized protocols for neuropsychological assessment across participating sites.
Authors
- Theresa Chiwera (ORCID: https://orcid.org/0000-0003-2884-4267)
- Philip Van Damme (ORCID: https://orcid.org/0000-0002-4010-2357)
- Miriam Galvin (ORCID: https://orcid.org/0000-0002-8232-8020)
- Sofiane Bencheikh
- Emily J. Mayberry (ORCID: https://orcid.org/0000-0002-4217-3941)
- Orla M. Hardiman (ORCID: https://orcid.org/0000-0003-2610-1291)
- Mark Heverin (ORCID: https://orcid.org/0000-0002-7326-4432)
- Ammar Al‐Chalabi (ORCID: https://orcid.org/0000-0002-4924-7712)
- Mamede de Carvalho (ORCID: https://orcid.org/0000-0001-7556-0158)
- Niall Pender (ORCID: https://orcid.org/0000-0002-4172-0704)
- Christopher J. McDermott (ORCID: https://orcid.org/0000-0002-1269-9053)
- Joke De Vocht (ORCID: https://orcid.org/0000-0003-4116-192X)
- Colm Peelo (ORCID: https://orcid.org/0000-0002-8418-8674)
- Juliette Foucher (ORCID: https://orcid.org/0000-0001-9026-0268)
- Andreas Hermann (ORCID: https://orcid.org/0000-0002-7364-7791)
- Caroline Ingre (ORCID: https://orcid.org/0000-0001-5327-7204)
- Leonard H. van den Berg (ORCID: https://orcid.org/0000-0002-5203-9674)
- Emmet Costello (ORCID: https://orcid.org/0000-0001-8620-9531)
- Francesca Palumbo (ORCID: https://orcid.org/0000-0002-7070-2409)
- Inês Alves (ORCID: https://orcid.org/0000-0002-7146-414X)
- Elisabeth Kasper (ORCID: https://orcid.org/0000-0003-0583-1236)
- Emily Beswick (ORCID: https://orcid.org/0000-0001-9843-0778)
- Éanna Mac Domhnaill (ORCID: https://orcid.org/0009-0001-1197-9950)
- Philippe Corcia
- Adriano Chiò
- Mónica Povedano Panadés
- Pamela Shaw
- Sharon Abrahams
- Alejandro Caravaca Puchades
- Fenna Hiemstra
- Mohammed Mouzouri
Institutions
- Université de Tours (FR)
- Mott MacDonald (United Kingdom) (GB)
- Karolinska University Hospital (SE)
- University of Lisbon (PT)
- King's College London (GB)
- Trinity College (CA)
- Trinity College Dublin (IE)
- German Center for Neurodegenerative Diseases (DE)
- Beaumont Hospital (IE)
- Bellvitge University Hospital (ES)
- Trinity College of Florida (US)
- Karolinska Institutet (SE)
- University Medical Center Utrecht (NL)
- Centre Hospitalier Universitaire de Tours (FR)
- Sheffield Teaching Hospitals NHS Foundation Trust (GB)
- Neuroscience Institute (IT)
- Laboratoire de Neurosciences Cognitives (FR)
- Institut des Sciences Cognitives Marc Jeannerod (FR)
- Thion Medical (France) (FR)
- The Beaumont Hospital (GB)
- Beaumont Hospital (US)
- University of Rostock (DE)
- Universidade Nova de Lisboa (PT)
- University of Sheffield (GB)
- University of Edinburgh (GB)
- KU Leuven (BE)
Publication Details
- Journal
- Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
- Published
- 2025-07-21
- DOI
- https://doi.org/10.1080/21678421.2025.2527877
- Primary Topic
- Amyotrophic Lateral Sclerosis Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00