Mapping the Unmet Informational Needs of Young Portuguese Female Cancer Survivors: Psychometric Validation of a Multidimensional Scale

<b>Background/Objectives:</b> Young female cancer survivors often face specific informational needs related to the physical and emotional effects of cancer and its impact on life plans, particularly fertility and parenthood. However, few tools are tailored to assess these needs during this critical life stage. This study aimed to (i) validate a multidimensional measure-the Satisfaction with Information Provided to Young Oncology Patients Scale (SIPYF-CPS)-to assess the specific informational needs of young adult female cancer survivors; and (ii) explore preferences regarding the provision of information and counseling. <b>Methods:</b> A total of 124 women (M[age] = 38.18; SD = 5.49; range 21-45), 76.6% diagnosed with breast cancer, participated in the study. Psychometric analyses included exploratory factor analysis and correlation coefficients to assess reliability and construct validity. Convergent validity was evaluated through standardized measures of anxiety, reproductive concerns, and quality of life. <b>Results:</b> A final 22-item measure demonstrated strong reliability and validity, capturing four factors: (i) Disease-Related Information, (ii) Symptoms and Functional Limitations, (iii) Implications for Fertility and Parenthood, and (iv) Support Services. Participants expressed low satisfaction with information on fertility preservation, sexual health, and support services. Lower satisfaction was moderately associated with higher anxiety and depression while positively related to quality of life. Most participants preferred phased, face-to-face communication throughout the illness trajectory. <b>Conclusions:</b> The SIPYF-CPS is a valid, multidimensional tool that captures the complex and evolving informational needs of young female cancer survivors. Its clinical use may promote earlier, personalized, and emotionally responsive communication-supporting psychological well-being, informed decision-making, and long-term survivorship care.

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Journal
Healthcare
Published
2025-07-20
DOI
https://doi.org/10.3390/healthcare13141757
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
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article

Mapping the Unmet Informational Needs of Young Portuguese Female Cancer Survivors: Psychometric Validation of a Multidimensional Scale

Ana Conde, Alexandra M. Araújo, Luiz Lourenço, Luana Costa Almeida et al.
Healthcare
Childhood Cancer Survivors' Quality of Life
article

Mapping the Unmet Informational Needs of Young Portuguese Female Cancer Survivors: Psychometric Validation of a Multidimensional Scale

Ana Conde, Alexandra M. Araújo, Luiz Lourenço, Luana Costa Almeida, Isabel M. Santos, Sara Monteiro›, Ana Bártolo, Isabel S. Silva
article en

Abstract

<b>Background/Objectives:</b> Young female cancer survivors often face specific informational needs related to the physical and emotional effects of cancer and its impact on life plans, particularly fertility and parenthood. However, few tools are tailored to assess these needs during this critical life stage. This study aimed to (i) validate a multidimensional measure-the Satisfaction with Information Provided to Young Oncology Patients Scale (SIPYF-CPS)-to assess the specific informational needs of young adult female cancer survivors; and (ii) explore preferences regarding the provision of information and counseling. <b>Methods:</b> A total of 124 women (M[age] = 38.18; SD = 5.49; range 21-45), 76.6% diagnosed with breast cancer, participated in the study. Psychometric analyses included exploratory factor analysis and correlation coefficients to assess reliability and construct validity. Convergent validity was evaluated through standardized measures of anxiety, reproductive concerns, and quality of life. <b>Results:</b> A final 22-item measure demonstrated strong reliability and validity, capturing four factors: (i) Disease-Related Information, (ii) Symptoms and Functional Limitations, (iii) Implications for Fertility and Parenthood, and (iv) Support Services. Participants expressed low satisfaction with information on fertility preservation, sexual health, and support services. Lower satisfaction was moderately associated with higher anxiety and depression while positively related to quality of life. Most participants preferred phased, face-to-face communication throughout the illness trajectory. <b>Conclusions:</b> The SIPYF-CPS is a valid, multidimensional tool that captures the complex and evolving informational needs of young female cancer survivors. Its clinical use may promote earlier, personalized, and emotionally responsive communication-supporting psychological well-being, informed decision-making, and long-term survivorship care.

HealthcareVol. 13(14)
Universidade Aberta (PT), Centre for Health Technology and Services Research (PT), Universidade Portucalense (PT), University of Aveiro (PT), University of Coimbra (PT), Instituto Piaget (PT)
Openalex Percentile: Top 75%
Childhood Cancer Survivors' Quality of Life
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