The UNI-AJA Project: A Feasibility Study Based on Real-World Data in French Adolescents and Young Adults with Cancer
The UNI-AJA project is a French epidemiological study analyzing cancer care pathways and outcomes in adolescents and young adults (AYAs, 15-29 years) from 2009 to 2022. Using data from 10 health institutions and national databases, it will examine treatment types, delays, second cancers, long-term effects, and causes of death. The study will employ deterministic linkage for comprehensive patient tracking. It will assess care evolution, the impact of AYA-specific structures, and treatment consequences. Findings will support improved cancer management and policy decisions in France. This project may lay the foundation for a national clinico-epidemiological database for AYAs with cancer.
Authors
- Perrine Marec‐Bérard (ORCID: https://orcid.org/0000-0001-5315-5864)
- Françoise Ducimetière (ORCID: https://orcid.org/0000-0003-2889-685X)
- Marilyne Poirée (ORCID: https://orcid.org/0000-0001-5515-8794)
- Thierry Durand (ORCID: https://orcid.org/0000-0001-6086-7296)
- Sabine Heinrich
- Pierre Kubicek (ORCID: https://orcid.org/0009-0004-1164-364X)
- Jill Serre
- Cyril Lervat (ORCID: https://orcid.org/0000-0002-5343-086X)
- Nicolás André (ORCID: https://orcid.org/0000-0002-6786-4968)
- Nathalie Gaspar (ORCID: https://orcid.org/0000-0002-1827-8903)
- Hugo Crochet (ORCID: https://orcid.org/0000-0002-9800-0986)
- Valérie Laurence (ORCID: https://orcid.org/0000-0003-4325-6252)
- Pascale Varlet (ORCID: https://orcid.org/0000-0002-8164-1517)
- Emmanuel Désandes (ORCID: https://orcid.org/0000-0002-7842-2858)
- Lionnel Geoffrois
- Maud Toulmonde (ORCID: https://orcid.org/0000-0003-3896-9274)
- Pierre Leblond (ORCID: https://orcid.org/0000-0002-7088-2614)
- Jean-Yves Blay
- M Salomon
- Alizée Diatchenko
- Lise Molimard
Institutions
- Agence Nationale de la Recherche (FR)
- Institut Gustave Roussy (FR)
- Centre Hospitalier Universitaire de Nice (FR)
- Assistance Publique Hôpitaux de Marseille (FR)
- Centre Hospitalier Universitaire de Tours (FR)
- Association pour l'Utilisation du Rein Artificiel dans la région Lyonnaise (FR)
- Institut de Cancérologie de Lorraine (FR)
- Centre Léon Bérard (FR)
- Institut de Cancérologie de l'Ouest (FR)
- Centre de Recherche et d’Information sur la Démocratie et l'Autonomie (FR)
- Centre Hospitalier Sainte-Anne (FR)
- Centre Oscar Lambret (FR)
- Institut Bergonié (FR)
- Institut Curie (FR)
Publication Details
- Journal
- Journal of Adolescent and Young Adult Oncology
- Published
- 2025-10-03
- DOI
- https://doi.org/10.1177/21565333251359614
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00