Decision-making experiences in gonadectomy and gonadal tissue cryopreservation for adolescents/young adults and parents of individuals with differences of sex development: A qualitative study
Our findings highlight the importance of engaging patients and families in shared decision-making, aligning personal goals with values. These decisions carry significant emotional and cognitive burdens, underscoring the need for multidisciplinary care inclusive of psychological support and continuous, structured discussions throughout the care continuum.
Authors
- Courtney Finlayson (ORCID: https://orcid.org/0000-0001-9704-4525)
- Lauren E. Corona (ORCID: https://orcid.org/0000-0002-2314-4619)
- Jaclyn L. Papadakis (ORCID: https://orcid.org/0000-0002-8556-2509)
- Josephine Hirsch (ORCID: https://orcid.org/0000-0002-3898-9614)
- Ilina Rosoklija (ORCID: https://orcid.org/0000-0002-8179-3254)
- Earl Y. Cheng (ORCID: https://orcid.org/0000-0002-0799-1738)
- Diane Chen (ORCID: https://orcid.org/0000-0002-7302-9248)
- Jax Whitehead (ORCID: https://orcid.org/0000-0002-0536-0676)
- Elizabeth B. Yerkes (ORCID: https://orcid.org/0000-0003-2680-9118)
- Emilie K. Johnson (ORCID: https://orcid.org/0000-0002-8500-9084)
- Ashley Talton
Institutions
- Northwestern University (US)
- Lurie Children's Hospital (US)
Publication Details
- Journal
- Journal of Pediatric Urology
- Published
- 2025-07-16
- DOI
- https://doi.org/10.1016/j.jpurol.2025.07.009
- Primary Topic
- Sexual Differentiation and Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00