Palliative care pathways in Amyotrophic Lateral Sclerosis (ALS): a sequence analysis of health claims data
Palliative care utilization varies substantially in type, order, and timing. Findings suggest that end-of-life care quality depends not only on the provision of palliative care but also on when and on how different services are combined. Future research should examine the role of interdisciplinary collaboration in palliative care pathways and explore preferences and clinical characteristics of pALS to better understand factors influencing end-of-life care quality.
Authors
- Richard Schmidt (ORCID: https://orcid.org/0000-0003-3611-0124)
- Antje Freytag (ORCID: https://orcid.org/0000-0001-8288-2729)
- Benjamin Ilse (ORCID: https://orcid.org/0000-0002-2260-0803)
- Franziska Meißner (ORCID: https://orcid.org/0009-0000-1791-2266)
- Ekaterina Slotina (ORCID: https://orcid.org/0009-0004-5414-7689)
- Verena Vogt (ORCID: https://orcid.org/0000-0002-6776-8781)
- Moritz Metelmann (ORCID: https://orcid.org/0000-0002-8670-6148)
Institutions
- Leipzig University of Applied Sciences (DE)
- University Hospital Leipzig (DE)
- Jena University Hospital (DE)
- Friedrich Schiller University Jena (DE)
- Leipzig University (DE)
Publication Details
- Journal
- BMC Palliative Care
- Published
- 2025-07-14
- DOI
- https://doi.org/10.1186/s12904-025-01843-x
- Primary Topic
- Amyotrophic Lateral Sclerosis Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Friedrich-Schiller-Universität Jena