A charter for improving care for people living with chronic lymphocytic leukemia: six principles for excellence

Chronic Lymphocytic Leukemia (CLL)is the most common leukemia in adults in Western countries, and its incidence is increasing. It is a complex, chronic disease with highly variable behavior. People living with CLL deserve an accurate diagnosis and should be empowered to play an active role in their care. They should be treated holistically as a person, not simply by their diagnosis. This charter has been developed with input from patient advocacy organizations, people living with CLL, and clinical specialists. It highlights the elements of care and support that matter most to people living with CLL as they navigate life with their diagnosis. We urge governments, decision-makers, healthcare providers, patient advocacy organizations, and professional organizations worldwide to embed these principles in their work and ensure they are hardwired into healthcare systems and support services to reform and improve CLL care.

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Publication Details

Journal
Leukemia & lymphoma/Leukemia and lymphoma
Published
2025-07-12
DOI
https://doi.org/10.1080/10428194.2025.2521656
Citations
2
Primary Topic
Chronic Lymphocytic Leukemia Research
Type
article
Field-Weighted Citation Impact
3.25
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article

A charter for improving care for people living with chronic lymphocytic leukemia: six principles for excellence

Brian Koffman, Lorna Warwick, Vandana Gupta, Catherine Moura et al.
2 citations
Leukemia & lymphoma/Leukemia and lymphoma
Chronic Lymphocytic Leukemia Research
3.25
article

A charter for improving care for people living with chronic lymphocytic leukemia: six principles for excellence

Brian Koffman, Lorna Warwick, Vandana Gupta, Catherine Moura, Piers Patten, Carolyn Owen, Felice Bombaci, John Francis Seymour, Yasmine Hassan, Peter Haggert, Comfort Maluleke
article en
2 citations

Abstract

Chronic Lymphocytic Leukemia (CLL)is the most common leukemia in adults in Western countries, and its incidence is increasing. It is a complex, chronic disease with highly variable behavior. People living with CLL deserve an accurate diagnosis and should be empowered to play an active role in their care. They should be treated holistically as a person, not simply by their diagnosis. This charter has been developed with input from patient advocacy organizations, people living with CLL, and clinical specialists. It highlights the elements of care and support that matter most to people living with CLL as they navigate life with their diagnosis. We urge governments, decision-makers, healthcare providers, patient advocacy organizations, and professional organizations worldwide to embed these principles in their work and ensure they are hardwired into healthcare systems and support services to reform and improve CLL care.

Leukemia & lymphoma/Leukemia and lymphomaVol. 66(11)
Alberta Health Services (CA), Advocates for Youth (US), Mintek (ZA), Peter MacCallum Cancer Centre (AU), Cancer Research UK (GB), Gruppo CLAS (Italy) (IT), AstraZeneca (Brazil) (BR), Health Care Foundation (CA), Precision Research Institute (US), Lymphoma Study Association (FR), GEDI Gruppo Editoriale (Italy) (IT), AstraZeneca (United States) (US), King's College Hospital (GB), Leukemia and Lymphoma Society (US), China Classification Society (CN)
Openalex Percentile: Top 8%
Chronic Lymphocytic Leukemia Research
3.25
DOISourceOpenAlex
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