<i>“We’re going to get through this together”:</i> patient, parent, and oncologist recommendations for providing emotional support in advanced childhood cancer

A diagnosis of pediatric cancer generates emotional distress for patients and parents, particularly during prognostic discussions in the context of upsetting information and uncertainty. Emotional support from pediatric oncologists is cited as a key factor in psychological well-being during these conversations; however, gaps persist in addressing emotional needs. This qualitative study explored perspectives from 25 patients with cancer aged 12-25 years with an estimated survival of ≤50%, 40 parents, and 20 pediatric oncologists on best practices for providing emotional support during prognostic discussions. Using a structured rapid qualitative analysis approach that employed standardized templates and summary matrices, we generated four key approaches for optimizing emotional support: 1) deliver high-quality information with consistent reliability; 2) dedicate time, space, and attention to families; 3) validate emotions; and 4) preserve hope and positivity. These themes offer actionable insights to inform the design of future communication skills training as well as clinical interventions to encourage individualized emotional support for patients and families facing advanced cancer.

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Publication Details

Journal
Journal of Psychosocial Oncology
Published
2025-07-12
DOI
https://doi.org/10.1080/07347332.2025.2528830
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
0.00

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article

“We’re going to get through this together”: patient, parent, and oncologist recommendations for providing emotional support in advanced childhood cancer

Justin Nathaniel Baker, Erica C. Kaye, Pamela S. Hinds, Shoshana Mehler et al.
Journal of Psychosocial Oncology
Childhood Cancer Survivors' Quality of Life
article

“We’re going to get through this together”: patient, parent, and oncologist recommendations for providing emotional support in advanced childhood cancer

Justin Nathaniel Baker, Erica C. Kaye, Pamela S. Hinds, Shoshana Mehler, Jennifer W. Mack, Calliope Reeves, Carol A. Christianson, Tara M. Brinkman, Harmony Farner
article en

Abstract

A diagnosis of pediatric cancer generates emotional distress for patients and parents, particularly during prognostic discussions in the context of upsetting information and uncertainty. Emotional support from pediatric oncologists is cited as a key factor in psychological well-being during these conversations; however, gaps persist in addressing emotional needs. This qualitative study explored perspectives from 25 patients with cancer aged 12-25 years with an estimated survival of ≤50%, 40 parents, and 20 pediatric oncologists on best practices for providing emotional support during prognostic discussions. Using a structured rapid qualitative analysis approach that employed standardized templates and summary matrices, we generated four key approaches for optimizing emotional support: 1) deliver high-quality information with consistent reliability; 2) dedicate time, space, and attention to families; 3) validate emotions; and 4) preserve hope and positivity. These themes offer actionable insights to inform the design of future communication skills training as well as clinical interventions to encourage individualized emotional support for patients and families facing advanced cancer.

Journal of Psychosocial OncologyVol. 44(1)
Rhodes College (US), St. Jude Children's Research Hospital (US), Children's National (US), Palo Alto University (US), George Washington University (US), NYU Langone Health (US), National Hospital (IN), Hinge Health (US), Neurobehavioral Systems (US), Stanford Health Care (US), Dana-Farber Cancer Institute (US)
American Lebanese Syrian Associated Charities, Instituto Nacional de Cancerología
Openalex Percentile: Top 76%
Childhood Cancer Survivors' Quality of Life
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