What did we learn from the IBD-BOOST research programme?

Background Inflammatory Bowel Disease (IBD) is associated with high levels of fatigue, pain and faecal incontinence. Aim To improve these symptoms and quality of life in people living with IBD. Methods We used qualitative and quantitative methods: interviews, a survey, a cohort study and a randomised controlled trial (RCT). Findings People reported vicious circle of symptoms and wanted to try a self-management intervention. The survey found that these symptoms often co-exist and that nearly a third of people wanted help for all three. Patients were willing to fill in a checklist and nurses could use an algorithm to decide what tests or interventions were needed. The RCT did not find an overall benefit from an online intervention, but those who completed more sessions were most likely to benefit. Conclusion We learned a lot, but there is still a need to find new ways to help these symptoms.