Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain: a cross-sectional study

This study aimed to determine how often health-related quality of life (HRQoL) is assessed in patients with pulmonary arterial hypertension (PAH) and to elucidate which tools are most frequently used in a real-life setting. We conducted a multicentric retrospective cross-sectional analysis of 3628 PAH patients enrolled in the Spanish Registry of Pulmonary Arterial Hypertension (REHAP) from 2007 to 2023. HRQoL questionnaires were used in only 67 patients (1.8%). Among them, generic tools were the most used (SF-36 in 16.9% and EQ5D in 10.2%). These findings highlight a marked underutilization of HRQoL assessment tools in PAH patients included in REHAP.

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Publication Details

Journal
European Journal of Cardiovascular Nursing
Published
2025-06-11
DOI
https://doi.org/10.1093/eurjcn/zvaf108
Primary Topic
Pulmonary Hypertension Research and Treatments
Type
article
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article

Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain: a cross-sectional study

Nuria Ochoa Parra, Joan Albert Barberà, Virginia Naranjo Velasco, María Arjona et al.
European Journal of Cardiovascular Nursing
Pulmonary Hypertension Research and Treatments
article

Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain: a cross-sectional study

Nuria Ochoa Parra, Joan Albert Barberà, Virginia Naranjo Velasco, María Arjona, José Miguel Morales‐Asencio, Ada del Mar Carmona-Segovia, Víctor Manuel Becerra‐Muñoz, Isabel Blanco, Pilar Escribano Subías, Manuel López‐Meseguer
article en

Abstract

This study aimed to determine how often health-related quality of life (HRQoL) is assessed in patients with pulmonary arterial hypertension (PAH) and to elucidate which tools are most frequently used in a real-life setting. We conducted a multicentric retrospective cross-sectional analysis of 3628 PAH patients enrolled in the Spanish Registry of Pulmonary Arterial Hypertension (REHAP) from 2007 to 2023. HRQoL questionnaires were used in only 67 patients (1.8%). Among them, generic tools were the most used (SF-36 in 16.9% and EQ5D in 10.2%). These findings highlight a marked underutilization of HRQoL assessment tools in PAH patients included in REHAP.

European Journal of Cardiovascular NursingVol. 24(7)
Hebron University (PS), Instituto de Salud Carlos III (ES), Centro de Investigación Biomédica en Red de Enfermedades Respiratorias (ES), Hospital Universitario 12 De Octubre (ES), Centro de Investigación Biomédica en Red (ES), Hospital Clínic de Barcelona (ES), Vall d'Hebron Hospital Universitari (ES), Andalusian Centre for Nanomedicine and Biotechnology (ES), Hospital Jerez Puerta del Sur (ES), Hospital Clínico Universitario Virgen de la Victoria (ES), Instituto de Investigación Biomédica de Málaga (ES), Universidad de Málaga (ES)
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