Benefits, Problems, and Motivations for Using the Online Patient Portal in Adolescent Oncology: Interviews With Adolescents and Parents
Adolescents with cancer and their parents believed that parents should be permitted access to nonsensitive clinical data in the adolescent's portal. Limiting portal access could create extra burdens on parents. Electronic health record companies and hospitals must develop technologies to permit parental access to nonsensitive information through the portal, especially in oncology.
Authors
- Lindsay Blazin (ORCID: https://orcid.org/0000-0002-9651-0616)
- Bryan A. Sisk (ORCID: https://orcid.org/0000-0002-2456-2476)
- Mark A. Fiala (ORCID: https://orcid.org/0000-0002-0208-5023)
- Jennifer W. Mack (ORCID: https://orcid.org/0000-0001-5791-4178)
- Christine Bereitschaft (ORCID: https://orcid.org/0000-0003-1336-9643)
- Maya Ilowite (ORCID: https://orcid.org/0000-0002-7961-5491)
- James M. DuBois (ORCID: https://orcid.org/0000-0002-3712-7051)
- Stephanie Chen
Institutions
- Washington University in St. Louis (US)
- Dana-Farber Cancer Institute (US)
- Dana-Farber/Boston Children's Cancer and Blood Disorders Center (US)
- Indiana University School of Medicine
- Indiana University – Purdue University Indianapolis (US)
Publication Details
- Journal
- JCO Clinical Cancer Informatics
- Published
- 2025-07-01
- DOI
- https://doi.org/10.1200/cci-25-00038
- Citations
- 2
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 6.99