Exploring the Real Mental Experience of Patients with Moyamoya Disease: A Qualitative Analysis
This study reveals the complex psychological burden experienced by Chinese patients with moyamoya disease, including persistent emotional distress, evolving coping strategies with disease progression, and unsatisfied needs for social and informational support. These findings underscore the need to incorporate psychological care (eg, early screening, emotional counseling, and caregiver engagement) into routine moyamoya disease management.
Authors
- Ning Zhang (ORCID: https://orcid.org/0000-0001-5841-4933)
- Meng Li (ORCID: https://orcid.org/0000-0002-3784-005X)
- Qiong Li (ORCID: https://orcid.org/0000-0002-8915-8781)
- Xiaoyun Xiong (ORCID: https://orcid.org/0000-0002-9206-265X)
- Junfan Wei (ORCID: https://orcid.org/0009-0005-6057-6719)
- Zhongjie Pan (ORCID: https://orcid.org/0000-0002-0241-7884)
- Shen Li
- Wenling Zhang (ORCID: https://orcid.org/0000-0003-2674-7092)
- Huawei Li (ORCID: https://orcid.org/0000-0002-0108-3958)
Institutions
- Guangzhou University of Chinese Medicine (CN)
- Henan Provincial People's Hospital (CN)
- Henan Forestry Vocational College (CN)
- Zhengzhou People's Hospital (CN)
- Zhengzhou University of Industrial Technology (CN)
- Henan Medical University (CN)
Publication Details
- Journal
- Patient Preference and Adherence
- Published
- 2025-07-01
- DOI
- https://doi.org/10.2147/ppa.s527947
- Primary Topic
- Moyamoya disease diagnosis and treatment
- Type
- article
- Field-Weighted Citation Impact
- 0.00